Illinois General Assembly - Full Text of HB0480
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Full Text of HB0480  94th General Assembly



HB0480 Engrossed LRB094 06314 LJB 36389 b

1     AN ACT concerning public health, which may be referred to
2 as Adamin and Ryan's Law.
3     Be it enacted by the People of the State of Illinois,
4 represented in the General Assembly:
5     Section 1. Short title. This Act may be cited as the
6 Newborn Eye Pathology Act.
7     Section 5. Policy. It is the policy of the State of
8 Illinois to make efforts to detect pediatric congenital ocular
9 abnormalities that lead to premature death, blindness, or
10 vision impairment unless treated soon after birth.
11     Section 10. Newborn Eye Pathology Advisory Committee.
12     (a) By January 1, 2006, the Department of Public Health
13 shall organize a Newborn Eye Pathology Advisory Committee and
14 appoint members of the Advisory Committee, including, but not
15 limited to, the following:
16         (1) Three ophthalmologists with backgrounds in or
17     knowledge of providing services to infants with
18     retinoblastoma, one from the Chicago metropolitan area,
19     one representing DuPage, Kane, Lake, McHenry, and Will
20     counties, and one from the southern counties of Illinois.
21         (2) A pediatric ophthalmologist who sees general
22     pediatric patients and is a designee of the American
23     Association for Pediatric Ophthalmology and Strabismus.
24         (3) An academic pediatrician with a background in or
25     knowledge of infant eye pathology.
26         (4) Three parents representing families with child
27     blindness or other ocular abnormalities affecting vision,
28     one from the Chicago metropolitan area, one representing
29     DuPage, Kane, Lake, McHenry, and Will counties, and one
30     from the southern counties of Illinois.
31         (5) A community pediatrician.



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1         (6) A nurse with a background in or knowledge of the
2     current Department's program for instillation of eye drops
3     to prevent conjunctivitis.
4         (7) A retinal specialist with research experience in
5     detecting the signs of treatable congenital eye disease.
6     (b) The Advisory Committee members shall serve without
7 compensation, but shall be reimbursed for necessary travel
8 expenses incurred in the performance of their duties.
9     (c) The duties of the Advisory Committee shall be to do all
10 of the following:
11         (1) Develop and conduct training for hospitals
12     implementing newborn eye pathology.
13         (2) Develop a referral system for early intervention
14     services for those infants diagnosed with a congenital
15     abnormality of the eye.
16         (3) Develop educational and informational materials
17     for hospital personnel, health care professionals, and
18     parents on appropriate follow-up procedures for infants
19     diagnosed with a congenital abnormality of the eye.
20         (4) Monitor any reports made available to the State
21     with respect to the eye pathology status of all newborns.
22     Section 15. Department of Public Health.
23     (a) All hospitals shall report information on all
24 congenital abnormalities or diseases of the eye detected in
25 newborns prior to discharge from the hospital to the Department
26 of Public Health.
27     (b) The Department of Public Health shall maintain a
28 registry of cases of reported congenital abnormalities or
29 diseases of the eye in newborns, including information needed
30 for the purpose of follow-up service. This information shall be
31 treated in the same manner as information under the
32 Communicable Disease Report Act.
33     (c) Any person or hospital making a report under this Act
34 shall have immunity from any liability, civil or criminal, that
35 may result by reason of making the report, except for willful



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1 or wanton misconduct.
2     Section 20. Rules. The Department of Public Health shall
3 adopt rules necessary to implement this Act.
4     Section 99. Effective date. This Act takes effect July 1,
5 2005.