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90_SB0327sam001
LRB9002552SMdvam02
1 AMENDMENT TO SENATE BILL 327
2 AMENDMENT NO. . Amend Senate Bill 327 on page 1, by
3 replacing line 2 with the following:
4 "changing Sections 3, 4, and 7."; and
5 by replacing everything after the enacting clause with the
6 following:
7 "Section 5. The Alzheimer's Disease Assistance Act is
8 amended by changing Sections 3, 4, and 7 as follows:
9 (410 ILCS 405/3) (from Ch. 111 1/2, par. 6953)
10 Sec. 3. Definitions. As used in this Act:
11 (a) "Alzheimer's disease and related disorders" means a
12 health condition resulting from significant destruction of
13 brain tissue with resultant loss of brain function,
14 including, but not limited to, progressive, degenerative and
15 dementing illnesses including presenile and senile dementias,
16 including Alzheimer's disease and other related disorders.
17 (b) "Regional Alzheimer's Disease Assistance Center" or
18 "Regional ADA Center" means any a postsecondary higher
19 educational institution having a medical school in
20 affiliation with a medical center and having a National
21 Institutes of Health and National Institutes on Aging
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1 sponsored Alzheimer's Disease Core Center, and designated as
2 such by the Illinois Department of Public Health under
3 Section 4 of this Act. Any Regional ADA Center which was
4 designated as having a National Alzheimer's Disease Core
5 Center but no longer carries such designation shall continue
6 to serve as a Regional ADA Center.
7 (c) "Primary Alzheimer's provider" means a licensed
8 hospital, a medical center under the supervision of a
9 physician licensed to practice medicine in all of its
10 branches, or a medical center that provides medical
11 consultation, evaluation, referral and treatment to persons
12 who may be or who have been diagnosed as victims of
13 Alzheimer's disease or related disorders pursuant to
14 policies, standards, criteria and procedures adopted under an
15 affiliation agreement with a Regional ADA Center under this
16 Act.
17 (d) "Alzheimer's disease assistance network" or "ADA
18 network" means the various health, mental health and social
19 services agencies that provide referral, treatment and
20 support services under standards and plans adopted and
21 implemented in conjunction with a Regional ADA Center.
22 (e) "ADA Advisory Committee" or "Advisory Committee" or
23 "Committee" means the Alzheimer's Disease Advisory Committee
24 created under Section 6 of this Act.
25 (f) "Department" means the Illinois Department of Public
26 Health.
27 (Source: P.A. 84-378; 84-513.)
28 (410 ILCS 405/4) (from Ch. 111 1/2, par. 6954)
29 Sec. 4. Development of standards for a service network
30 and designation of regional centers and primary providers.
31 By January 1, 1987, the Department, in consultation with the
32 Advisory Committee, shall develop standards for the conduct
33 of research and for the identification, evaluation,
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1 diagnosis, referral and treatment of victims of Alzheimer's
2 disease and related disorders and their families through the
3 ADA network of designated regional centers and other
4 providers of service under this Act. Such standards shall
5 include:
6 (a) A description of the specific populations and
7 geographic areas to be served through ADA networks that may
8 be established under this Act;
9 (b) Standards, criteria and procedures for designation
10 of Regional ADA Centers, which ensure the provision of
11 quality care to a broad segment of the population through
12 on-site facilities and services and through a network of
13 primary Alzheimer's providers and other providers of service
14 that may be available within the service area defined by the
15 Department. At least 2 one Regional ADA Centers Center shall
16 be conveniently located to serve the Chicago metropolitan
17 area and at least one Regional ADA Center shall be
18 conveniently located to serve the balance of the State. The
19 Regional ADA Centers shall provide at least the following:
20 (1) Comprehensive diagnosis and treatment facilities and
21 services which have (i) professional medical staff
22 specially-trained in geriatric medicine, neurology,
23 psychiatry and pharmacology, and the detection, diagnosis and
24 treatment of Alzheimer's disease and related disorders, (ii)
25 sufficient support staff who are trained as caregivers to
26 victims of Alzheimer's disease and related disorders, (iii)
27 appropriate and adequate equipment necessary for diagnosis
28 and treatment, (iv) transportation services necessary for
29 outreach to the service area defined by the Department and
30 for assuring access of patients to available services, (v)
31 and such other support services, staff and equipment as may
32 be required;
33 (2) Consultation and referral services for victims and
34 their families to ensure informed consent to treatment and to
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1 assist them in obtaining necessary assistance and support
2 services through primary Alzheimer's providers and various
3 private and public agencies that may otherwise be available
4 to provide services under this Act;
5 (3) Research programs and facilities to assist faculty
6 and students in discovering the cause of and the diagnosis,
7 cure and treatment for Alzheimer's disease and related
8 disorders;
9 (4) Training, consultation and continuing education for
10 caregivers, including families of those who are affected by
11 Alzheimer's disease and related disorders;
12 (5) Centralized data collection, processing and storage
13 that will serve as a clearinghouse of information to assist
14 victims, families and ADA Resources, and to facilitate
15 research; and
16 (6) Programs of scientific and medical research in
17 relation to Alzheimer's disease and related disorders that
18 are designed and conducted in a manner that may enable such
19 center to qualify for Federal financial participation in the
20 cost of such programs.
21 (c) Procedures for recording and reporting research and
22 treatment results by primary Alzheimer's providers and other
23 affiliated providers of service that are within the ADA
24 network to the Regional ADA Center and to the Department;
25 (d) Policies, procedures and minimum standards and
26 criteria to be included in affiliation agreements between
27 primary Alzheimer's providers and the Regional ADA Center in
28 the conduct of any research and in the diagnosis, referral
29 and treatment of victims of Alzheimer's disease and related
30 disorders and their families; and
31 (e) Policies, procedures, standards and criteria,
32 including medical and financial eligibility factors,
33 governing admission to and utilization of the programs,
34 facilities and services available through the ADA network by
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1 persons who may be or who have been diagnosed as victims of
2 Alzheimer's disease and related disorders, including forms
3 and procedures for obtaining necessary patient consents to
4 participation in research, and in the reporting and
5 processing of appropriate information in a patient's medical
6 records in relation to consultations, referrals and
7 treatments by the various providers of service within the ADA
8 network.
9 (Source: P.A. 84-378; 84-513.)
10 (410 ILCS 405/7) (from Ch. 111 1/2, par. 6957)
11 Sec. 7. Regional ADA center grants-in-aid. Pursuant to
12 appropriations enacted by the General Assembly, the
13 Department shall provide grants-in-aid to each Regional ADA
14 Center Centers for necessary research and for the development
15 and maintenance of services for victims of Alzheimer's
16 disease and related disorders and families in accordance with
17 the State Alzheimer's Assistance Plan. The Department shall
18 promulgate rules and procedures governing the distribution
19 and specific purposes for such grants, including any
20 contributions of recipients of services toward the cost of
21 care.
22 (Source: P.A. 84-378; 84-513.)".