Full Text of HB2661 98th General Assembly
HB2661eng 98TH GENERAL ASSEMBLY |
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| 1 | | AN ACT concerning health facilities.
| 2 | | Be it enacted by the People of the State of Illinois,
| 3 | | represented in the General Assembly:
| 4 | | Section 5. The Alternative Health Care Delivery Act is | 5 | | amended by adding Section 85 as follows: | 6 | | (210 ILCS 3/85 new) | 7 | | Sec. 85. Newborn screening; critical congenital heart | 8 | | defects. | 9 | | (a) The General Assembly finds as follows: | 10 | | (1) Congenital heart defects (CHDs) are structural | 11 | | abnormalities of the heart that are
present at birth. CHDs | 12 | | range in severity from simple problems such as holes | 13 | | between
chambers of the heart to severe malformations, such | 14 | | as the complete absence of one or more
chambers or valves. | 15 | | Some critical CHDs can cause severe and life-threatening | 16 | | symptoms
that require intervention within the first days of | 17 | | life. | 18 | | (2) According to the United States Secretary of Health | 19 | | and Human Services' Advisory
Committee on Heritable | 20 | | Disorders in Newborns and Children, congenital heart | 21 | | disease
affects approximately 7 to 9 of every 1,000 live | 22 | | births in the United States and
Europe. The federal Centers | 23 | | for Disease Control and Prevention states that CHD is the
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| 1 | | leading cause of infant death due to birth defects. | 2 | | (3) Current methods for detecting CHDs generally | 3 | | include prenatal ultrasound screening
and repeated | 4 | | clinical examinations. While prenatal ultrasound | 5 | | screenings can detect some
major congenital heart defects, | 6 | | these screenings, alone, identify less than half of all CHD
| 7 | | cases, and critical CHD cases are often missed during | 8 | | routine clinical exams performed prior
to a newborn's | 9 | | discharge from a birthing facility. | 10 | | (4) Pulse oximetry is a non-invasive test that | 11 | | estimates the percentage of hemoglobin in
blood that is | 12 | | saturated with oxygen. When performed on a newborn within a | 13 | | minimum of 24 hours
after birth, pulse oximetry screening | 14 | | is often more effective at detecting critical, | 15 | | life-threatening
CHDs that otherwise go undetected by | 16 | | current screening methods. Newborns
with abnormal pulse | 17 | | oximetry results require immediate confirmatory testing | 18 | | and
intervention. | 19 | | (5) Many newborn lives could potentially be saved by | 20 | | earlier detection and treatment of
CHDs if birthing | 21 | | facilities in the State were required to perform this | 22 | | simple, non-invasive
newborn screening in conjunction with | 23 | | current CHD screening methods. | 24 | | (b) All birth centers must test every newborn for critical | 25 | | congenital heart defects via a screening test in line with the | 26 | | current standard of care, such as pulse oximetry screening, |
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| 1 | | according to critical congenital heart defect screening | 2 | | protocols developed by the Department of Public Health in | 3 | | consultation with relevant medical practitioners and | 4 | | stakeholders. | 5 | | (c) Exceptions to mandatory critical congenital heart | 6 | | defect screenings shall be limited to cases in which the | 7 | | parents object to the screening, or as directed by the critical | 8 | | congenital heart defect screening protocol. | 9 | | Section 10. The Hospital Licensing Act is amended by adding | 10 | | Section 17 as follows: | 11 | | (210 ILCS 85/17 new) | 12 | | Sec. 17. Newborn screening; critical congenital heart | 13 | | defects. | 14 | | (a) The General Assembly finds as follows: | 15 | | (1) Congenital heart defects (CHDs) are structural | 16 | | abnormalities of the heart that are
present at birth. CHDs | 17 | | range in severity from simple problems such as holes | 18 | | between
chambers of the heart to severe malformations, such | 19 | | as the complete absence of one or more
chambers or valves. | 20 | | Some critical CHDs can cause severe and life-threatening | 21 | | symptoms
that require intervention within the first days of | 22 | | life. | 23 | | (2) According to the United States Secretary of Health | 24 | | and Human Services' Advisory
Committee on Heritable |
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|
| 1 | | Disorders in Newborns and Children, congenital heart | 2 | | disease
affects approximately 7 to 9 of every 1,000 live | 3 | | births in the United States and
Europe. The federal Centers | 4 | | for Disease Control and Prevention states that CHD is the
| 5 | | leading cause of infant death due to birth defects. | 6 | | (3) Current methods for detecting CHDs generally | 7 | | include prenatal ultrasound screening
and repeated | 8 | | clinical examinations. While prenatal ultrasound | 9 | | screenings can detect some
major congenital heart defects, | 10 | | these screenings, alone, identify less than half of all CHD
| 11 | | cases, and critical CHD cases are often missed during | 12 | | routine clinical exams performed prior
to a newborn's | 13 | | discharge from a birthing facility. | 14 | | (4) Pulse oximetry is a non-invasive test that | 15 | | estimates the percentage of hemoglobin in
blood that is | 16 | | saturated with oxygen. When performed on a newborn within a | 17 | | minimum of 24 hours
after birth, pulse oximetry screening | 18 | | is often more effective at detecting critical, | 19 | | life-threatening
CHDs that otherwise go undetected by | 20 | | current screening methods. Newborns
with abnormal pulse | 21 | | oximetry results require immediate confirmatory testing | 22 | | and
intervention. | 23 | | (5) Many newborn lives could potentially be saved by | 24 | | earlier detection and treatment of
CHDs if birthing | 25 | | facilities in the State were required to perform this | 26 | | simple, non-invasive
newborn screening in conjunction with |
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| 1 | | current CHD screening methods. | 2 | | (b) All birthing hospitals must test every newborn for | 3 | | critical congenital heart defects via a screening test in line | 4 | | with the current standard of care, such as pulse oximetry | 5 | | screening, according to critical congenital heart defect | 6 | | screening protocols developed by the Department of Public | 7 | | Health in consultation with relevant medical practitioners and | 8 | | stakeholders. | 9 | | (c) Exceptions to mandatory critical congenital heart | 10 | | defect screenings shall be limited to cases in which the | 11 | | parents object to the screening, or as directed by the critical | 12 | | congenital heart defect screening protocol.
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