SB3277eng 103RD GENERAL ASSEMBLY

SB3277 Engrossed LRB103 36743 CES 66853 b

AN ACT concerning health.

Be it enacted by the People of the State of Illinois, represented in the General Assembly:

Section 1. References to Act. This Act may be referred to as the Duchenne Muscular Dystrophy Act.

Section 5. The Department of Public Health Powers and Duties Law of the Civil Administrative Code of Illinois is amended by adding Section 2310-730 as follows:

(20 ILCS 2310/2310-730 new)

Sec. 2310-730. Duchenne Muscular Dystrophy Awareness Program.

(a) Subject to appropriation, the Department of Public Health, in conjunction with experts in the field of Duchenne muscular dystrophy, shall develop mandatory protocols and best practices for providing the necessary medical guidance for Duchenne muscular dystrophy in Illinois.

(b) To raise awareness about Duchenne muscular dystrophy, the protocols and best practices developed by the Department under subsection (a):

(1) shall be published on a designated and publicly accessible webpage;

(2) shall include up-to-date information about Duchenne muscular dystrophy;

(3) shall reference peer-reviewed scientific research articles;

(4) shall incorporate guidance and recommendations from the National Institutes of Health, and any other persons or entities determined by the Department to have particular expertise in Duchenne muscular dystrophy; and

(5) shall be distributed to physicians, other health care professionals and providers, and persons subject to Duchenne muscular dystrophy.

(c) The Department shall prepare a report of all efforts undertaken by the Department under this Section. The report shall be posted on the Department's website and distributed to local health departments and to any other facilities as determined by the Department.