State of Illinois
90th General Assembly
Legislation

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[ House Amendment 001 ]

90_HB0725sam001

                                           LRB9001282DJmbam01
 1                     AMENDMENT TO HOUSE BILL 725
 2        AMENDMENT NO.     .  Amend House Bill  725  by  replacing
 3    the title with the following:
 4        "AN  ACT  concerning  health care, amending named Acts.";
 5    and
 6    by replacing everything after the enacting  clause  with  the
 7    following:
 8        "Section  5.   The  Right of Conscience Act is amended by
 9    changing Sections 1, 2, 3, 4, 5, 6, 7, 8, 9, 10, 11, 12,  13,
10    and 14 and adding Sections 11.2, 11.3, and 11.4 as follows:
11        (745 ILCS 70/1) (from Ch. 111 1/2, par. 5301)
12        Sec. 1.  Short title.  This Act shall be known and may be
13    cited as the Health Care "Right of Conscience Act".
14    (Source: P.A. 80-616.)
15        (745 ILCS 70/2) (from Ch. 111 1/2, par. 5302)
16        Sec. 2.  Findings and policy.  The General Assembly finds
17    and  declares  that  people  and organizations hold different
18    beliefs  about  whether  certain  health  care  services  are
19    morally acceptable.  It is the public policy of the State  of
                            -2-            LRB9001282DJmbam01
 1    Illinois  to  respect  and protect the right of conscience of
 2    all persons who refuse to obtain, receive or accept,  or  who
 3    are  engaged in, the delivery of, arrangement for, or payment
 4    of health care medical  services  and  medical  care  whether
 5    acting  individually,  corporately,  or  in  association with
 6    other persons; and to prohibit all forms  of  discrimination,
 7    disqualification,   coercion,  disability  or  imposition  of
 8    liability upon such persons or entities by  reason  of  their
 9    refusing to act contrary to their conscience or conscientious
10    convictions  in  refusing  to  obtain,  receive,  accept,  or
11    deliver,  pay  for, or arrange for the payment of health care
12    medical services and medical care.
13    (Source: P.A. 80-616.)
14        (745 ILCS 70/3) (from Ch. 111 1/2, par. 5303)
15        Sec. 3.  Definitions.  As used in this  Act,  unless  the
16    context clearly otherwise requires:
17        (a)  "Health  Medical  care"  means  any phase of patient
18    care, including  but  not  limited  to,  testing;  diagnosis;
19    prognosis; ancillary research; instructions; family planning,
20    counselling,  referrals,  or  any  other advice in connection
21    with  the  use   or   procurement   of   contraceptives   and
22    sterilization  or abortion procedures; medication; or surgery
23    or other  care  or  treatment  rendered  by  a  physician  or
24    physicians,  nurses, paraprofessionals or health care medical
25    facility, intended for the physical,  emotional,  and  mental
26    well-being of persons;
27        (b)  "Physician"  means  any  person  who  is entitled to
28    provide medical services or medical care or  is  licensed  by
29    the  State of Illinois under the Medical Practice Act of 1987
30    to practice medicine in all its branches, whether as  intern,
31    resident,  medical trainee, or fully licensed practitioner of
32    medicine;
33        (c)  "Health care Medical  personnel"  means  any  nurse,
                            -3-            LRB9001282DJmbam01
 1    nurses'  aide  aid,  medical  school  student,  professional,
 2    paraprofessional  or  any  other  person  who  furnishes,  or
 3    assists  in  the  furnishing  of,  health  care  medical care
 4    services;
 5        (d)  "Health care Medical facility" means any  public  or
 6    private  hospital,  clinic,  center,  medical school, medical
 7    training institution, laboratory or  diagnostic  health  care
 8    facility,    physician's   office,   infirmary,   dispensary,
 9    ambulatory surgical treatment center or other institution  or
10    location  wherein  health  care  services are medical care is
11    provided to any person, including physician organizations and
12    associations,  networks,  joint  ventures,  and   all   other
13    combinations of those organizations; and
14        (e)  "Conscience"  means  a  sincerely  held set of moral
15    convictions arising from belief in and relation  to  God,  or
16    which,  though not so derived, arises obtains from a place in
17    the life of its possessor parallel  to  that  filled  by  God
18    among adherents to religious faiths; and.
19        (f)  "Health  care  payer"  means  a  health  maintenance
20    organization,    insurance   company,   management   services
21    organization, or any other entity that pays for  or  arranges
22    for  the  payment of any health care or medical care service,
23    procedure, or product.
24        The above definitions include not  only  the  traditional
25    combinations and forms of these persons and organizations but
26    also  all  new  and  emerging forms and combinations of these
27    persons and organizations.
28    (Source: P.A. 80-616.)
29        (745 ILCS 70/4) (from Ch. 111 1/2, par. 5304)
30        Sec. 4.  Liability.  No physician or health care  medical
31    personnel  shall  be  civilly  or  criminally  liable  to any
32    person, estate, public or private entity or  public  official
33    by  reason of his or her refusal to perform, assist, counsel,
                            -4-            LRB9001282DJmbam01
 1    suggest, recommend, refer or participate in any  way  in  any
 2    particular  form  of  health  medical  care  service which is
 3    contrary to the conscience of such physician or  health  care
 4    medical personnel.
 5    (Source: P.A. 80-616.)
 6        (745 ILCS 70/5) (from Ch. 111 1/2, par. 5305)
 7        Sec.  5.   Discrimination.   It shall be unlawful for any
 8    person, public or private institution, or public official  to
 9    discriminate  against any person in any manner, including but
10    not limited to, licensing, hiring, promotion, transfer, staff
11    appointment, hospital, managed  care  entity,  or  any  other
12    privileges, because of such person's conscientious refusal to
13    receive,  obtain,  accept, perform, assist, counsel, suggest,
14    recommend, refer or participate in any way in any  particular
15    form  of health care services medical care contrary to his or
16    her conscience.
17    (Source: P.A. 80-616.)
18        (745 ILCS 70/6) (from Ch. 111 1/2, par. 5306)
19        Sec.  6.   Duty  of  physicians  and  other  health  care
20    personnel.  Nothing in this Act  shall  relieve  a  physician
21    from  any  duty,  which  may  exist under any laws concerning
22    current  standards,   of   normal   medical   practices   and
23    procedures,  to  inform  his  or her patient of the patient's
24    condition, prognosis and risks, provided, however, that  such
25    physician shall be under no duty to perform, assist, counsel,
26    suggest,  recommend,  refer  or participate in any way in any
27    form of medical practice or health medical care service  that
28    is contrary to his or her conscience.
29        Nothing in this Act shall be construed so as to relieve a
30    physician   or  other  health  care  medical  personnel  from
31    obligations under the  law  of  providing  emergency  medical
32    care.
                            -5-            LRB9001282DJmbam01
 1    (Source: P.A. 80-616.)
 2        (745 ILCS 70/7) (from Ch. 111 1/2, par. 5307)
 3        Sec. 7.  Discrimination by employers or institutions.  It
 4    shall be unlawful for any public or private employer, entity,
 5    agency,  institution,  official  or person, including but not
 6    limited to, a medical,  nursing  or  other  medical  training
 7    institution,  to  deny  admission  because  of,  to place any
 8    reference in  its  application  form  concerning,  to  orally
 9    question  about, to impose any burdens in terms or conditions
10    of employment on, or to otherwise discriminate  against,  any
11    applicant,   in   terms   of   employment,  admission  to  or
12    participation in any programs  for  which  the  applicant  is
13    eligible,  or  to  discriminate  in  relation thereto, in any
14    other manner,  on  account  of  the  applicant's  refusal  to
15    receive,   obtain,   accept,   perform,   counsel,   suggest,
16    recommend,  refer,  assist  or  participate in any way in any
17    forms of health medical care services contrary to his or  her
18    conscience.
19    (Source: P.A. 80-616.)
20        (745 ILCS 70/8) (from Ch. 111 1/2, par. 5308)
21        Sec. 8.  Denial of aid or benefits.  It shall be unlawful
22    for  any  public  official,  guardian, agency, institution or
23    entity to deny any form of aid, assistance or benefits, or to
24    condition the reception in  any  way  of  any  form  of  aid,
25    assistance  or  benefits,  or  in any other manner to coerce,
26    disqualify or  discriminate  against  any  person,  otherwise
27    entitled  to  such  aid, assistance or benefits, because that
28    person refuses to obtain, receive, accept,  perform,  assist,
29    counsel,  suggest, recommend, refer or participate in any way
30    in any form of health medical care services contrary  to  his
31    or her conscience.
32    (Source: P.A. 80-616.)
                            -6-            LRB9001282DJmbam01
 1        (745 ILCS 70/9) (from Ch. 111 1/2, par. 5309)
 2        Sec.   9.    Liability.    No   person,  association,  or
 3    corporation, which owns, operates, supervises, or  manages  a
 4    health  care  medical facility shall be civilly or criminally
 5    liable to any person, estate, or public or private entity  by
 6    reason of refusal of the health care such medical facility to
 7    permit  or provide any particular form of health medical care
 8    service  which  violates   the   facility's   conscience   as
 9    documented  in  its  ethical  guidelines,  mission statement,
10    constitution,  by-laws,   articles   of   incorporation,   or
11    regulations, or other governing documents.
12        Nothing in this act shall be construed so as to relieve a
13    physician   or  other  health  care  medical  personnel  from
14    obligations under the  law  of  providing  emergency  medical
15    care.
16    (Source: P.A. 80-616.)
17        (745 ILCS 70/10) (from Ch. 111 1/2, par. 5310)
18        Sec.  10.   Discrimination against facility.  It shall be
19    unlawful for any person, public  or  private  institution  or
20    public   official   to   discriminate   against  any  person,
21    association or corporation  attempting  to  establish  a  new
22    health  care medical facility or operating an existing health
23    care medical facility,  in  any  manner,  including  but  not
24    limited   to,  denial,  deprivation  or  disqualification  in
25    licensing,  granting  of  authorizations,  aids,  assistance,
26    benefits, medical staff or any other privileges, and granting
27    authorization to expand, improve, or create any  health  care
28    medical  facility,  by  reason of the refusal of such person,
29    association or corporation planning, proposing or operating a
30    health care  medical  facility,  to  permit  or  perform  any
31    particular form of health medical care service which violates
32    the  health  care  facility's conscience as documented in its
33    existing or proposed ethical guidelines,  mission  statement,
                            -7-            LRB9001282DJmbam01
 1    constitution,   by-laws,   articles   of   incorporation,  or
 2    regulations, or other governing documents.
 3    (Source: P.A. 80-616.)
 4        (745 ILCS 70/11) (from Ch. 111 1/2, par. 5311)
 5        Sec. 11.  Denial of aid or benefit  to  a  facility.   It
 6    shall   be   unlawful   for   any  public  official,  agency,
 7    institution or entity to deny any form  of  aid,  assistance,
 8    grants  or  benefits;  or  in  any  other  manner  to coerce,
 9    disqualify or discriminate against any person, association or
10    corporation attempting to establish a new health care medical
11    facility  or  operating  an  existing  health  care   medical
12    facility  which  otherwise  would  be  entitled  to  the aid,
13    assistance, grant or benefit because the existing or proposed
14    health care medical  facility  refuses  to  perform,  assist,
15    counsel,  suggest, recommend, refer or participate in any way
16    in any form of health medical care services contrary  to  the
17    health  care  facility's  conscience  as  documented  in  its
18    existing  or  proposed ethical guidelines, mission statement,
19    constitution,  by-laws,   articles   of   incorporation,   or
20    regulations, or other governing documents.
21    (Source: P.A. 80-616.)
22        (745 ILCS 70/11.2 new)
23        Sec.  11.2.  Liability  of  health care payer.  No health
24    care payer and no person, association,  or  corporation  that
25    owns,  operates,  supervises,  or manages a health care payer
26    shall be civilly or criminally liable to any person,  estate,
27    or  public  or  private  entity  by  reason of refusal of the
28    health care payer to pay for or arrange for  the  payment  of
29    any  particular form of health care services that violate the
30    health care payer's conscience as documented in  its  ethical
31    guidelines,   mission   statement,   constitution,   by-laws,
32    articles  of  incorporation,  regulations, or other governing
                            -8-            LRB9001282DJmbam01
 1    documents.
 2        (745 ILCS 70/11.3 new)
 3        Sec. 11.3.  Discrimination against health care  payer  in
 4    licensing.   It  shall  be unlawful for any person, public or
 5    private  institution,  or  public  official  to  discriminate
 6    against  any  person,   association,   or   corporation   (i)
 7    attempting  to  establish  a  new  health  care payer or (ii)
 8    operating an existing  health  care  payer,  in  any  manner,
 9    including   but  not  limited  to,  denial,  deprivation,  or
10    disqualification in licensing;  granting  of  authorizations,
11    aids,  assistance,  benefits,  or  any  other privileges; and
12    granting authorization to  expand,  improve,  or  create  any
13    health  care  payer,  because  the  person,  association,  or
14    corporation  planning,  proposing, or operating a health care
15    payer refuses to pay for or arrange for the  payment  of  any
16    particular  form  of  health  care services that violates the
17    health care payer's conscience as documented in the  existing
18    or    proposed   ethical   guidelines,   mission   statement,
19    constitution, by-laws, articles of incorporation, regulations
20    or other governing documents.
21        (745 ILCS 70/11.4 new)
22        Sec. 11.4.  Denial of aid  or  benefits  to  health  care
23    payer  for refusal to participate in certain health care.  It
24    shall  be  unlawful  for   any   public   official,   agency,
25    institution,  or  entity to deny any form of aid, assistance,
26    grants, or benefits;  or  in  any  other  manner  to  coerce,
27    disqualify,  or discriminate against any person, association,
28    or corporation attempting to  establish  a  new  health  care
29    payer  or  operating  an  existing  health  care  payer  that
30    otherwise would be entitled to the aid, assistance, grant, or
31    benefit  because  the  existing or proposed health care payer
32    refuses  to  pay  for,  arrange  for  the  payment   of,   or
                            -9-            LRB9001282DJmbam01
 1    participate  in  any  way in any form of health care services
 2    contrary to the health care payer's conscience as  documented
 3    in  its  existing  or  proposed  ethical  guidelines, mission
 4    statement, constitution, by-laws, articles of  incorporation,
 5    regulations, or other governing documents.
 6        (745 ILCS 70/12) (from Ch. 111 1/2, par. 5312)
 7        Sec.  12.   Actions;  damages.   Any person, association,
 8    corporation, entity or health care medical  facility  injured
 9    by  any public or private person, association, agency, entity
10    or corporation by reason of any  action  prohibited  by  this
11    Act,  as  now  or  hereafter  amended,  may  commence  a suit
12    therefor, and shall recover  threefold  the  actual  damages,
13    including  pain  and  suffering,  sustained  by  such person,
14    association,  corporation,  entity  or  health  care  medical
15    facility, the costs of the  suit  and  reasonable  attorney's
16    fees;  but  in no case shall recovery be less than $2,500 for
17    each  violation  in  addition  to  costs  of  the  suit   and
18    reasonable  attorney's  fees.  These damage remedies shall be
19    cumulative, and not  exclusive  of  other  remedies  afforded
20    under any other state or federal law.
21    (Source: P.A. 80-616.)
22        (745 ILCS 70/13) (from Ch. 111 1/2, par. 5313)
23        Sec. 13.  Liability for refusal to provide certain health
24    care.  Nothing in this Act shall be construed as excusing any
25    person,  public  or  private  institution, or public official
26    from liability for refusal to permit or provide a  particular
27    form of health medical care service if:
28        (a)  the  person, public or private institution or public
29    official has entered into a contract specifically to  provide
30    that particular form of health medical care service; or
31        (b)  the  person, public or private institution or public
32    official has accepted federal or state  funds  for  the  sole
                            -10-           LRB9001282DJmbam01
 1    purpose  of, and specifically conditioned upon, permitting or
 2    providing  that  particular  form  of  health  medical   care
 3    service.
 4    (Source: P.A. 80-616.)
 5        (745 ILCS 70/14) (from Ch. 111 1/2, par. 5314)
 6        Sec.   14.    Supersedes  other  Acts.   This  Act  shall
 7    supersede all other Acts or parts of Acts to the extent  that
 8    any  such  prior  Acts or parts of Acts are inconsistent with
 9    the terms or operation of this Act.
10    (Source: P.A. 80-616.)
11        Section 10.  The Health Care Surrogate Act is amended  by
12    changing Sections 5, 10, 15, 20, and 25 as follows:
13        (755 ILCS 40/5) (from Ch. 110 1/2, par. 851-5)
14        Sec. 5.  Legislative findings and purposes.
15        (a)  Findings.
16        The  legislature  recognizes  that  all  persons  have  a
17    fundamental  right  to  make  decisions relating to their own
18    medical   treatment,   including   the   right    to    forgo
19    life-sustaining treatment.
20        Lack  of  decisional  capacity, alone, should not prevent
21    decisions to forgo life-sustaining treatment from being  made
22    on behalf of persons who lack decisional capacity and have no
23    known  applicable living will or power of attorney for health
24    care.
25        Uncertainty and lack of clarity in the law concerning the
26    making of private decisions concerning medical treatment  and
27    to   forgo   life-sustaining   treatment,   without  judicial
28    involvement, causes unnecessary  emotional  distress  to  the
29    individuals  involved  and unduly impedes upon the individual
30    right to forgo life-sustaining treatment.
31        The  enactment  of  statutory  guidelines   for   private
                            -11-           LRB9001282DJmbam01
 1    decision  making will bring improved clarity and certainty to
 2    the process for  implementing  decisions  concerning  medical
 3    treatment  and  to  forgo  life-sustaining treatment and will
 4    substantially reduce the associated  emotional  distress  for
 5    involved parties.
 6        (b)  Purposes.
 7        This  Act  is  intended to define the circumstances under
 8    which private decisions by patients with decisional  capacity
 9    and  by  surrogate  decision  makers  on  behalf  of patients
10    lacking  decisional  capacity  to  make   medical   treatment
11    decisions  or  to  terminate life-sustaining treatment may be
12    made without judicial involvement of any kind.
13        This Act is intended to  establish  a  process  for  that
14    private decision making.
15        This   Act   is   intended  to  clarify  the  rights  and
16    obligations of those involved in these private  decisions  by
17    or on behalf of patients.
18        This  Act  is  not  intended  to  condone,  authorize, or
19    approve mercy killing or assisted suicide.
20    (Source: P.A. 87-749)
21        (755 ILCS 40/10) (from Ch. 110 1/2, par. 851-10)
22        Sec. 10.  Definitions.
23        "Adult" means a person who is (i)  18  years  of  age  or
24    older  or (ii) an emancipated minor under the Emancipation of
25    Mature Minors Act.
26        "Artificial nutrition and hydration" means supplying food
27    and water through a conduit, such as a  tube  or  intravenous
28    line,  where the recipient is not required to chew or swallow
29    voluntarily,  including,  but  not  limited  to,  nasogastric
30    tubes,   gastrostomies,   jejunostomies,   and    intravenous
31    infusions.   Artificial  nutrition  and  hydration  does  not
32    include assisted feeding, such as spoon or bottle feeding.
33        "Available"  means that a person is not "unavailable".  A
                            -12-           LRB9001282DJmbam01
 1    person is unavailable if (i) the person's  existence  is  not
 2    known,  (ii)  the person has not been able to be contacted by
 3    telephone or mail,  or  (iii)  the  person  lacks  decisional
 4    capacity,  refuses  to  accept the office of surrogate, or is
 5    unwilling to respond in a  manner  that  indicates  a  choice
 6    among the life-sustaining treatment matters at issue.
 7        "Attending  physician" means the physician selected by or
 8    assigned to the patient who has  primary  responsibility  for
 9    treatment  and  care  of  the  patient  and who is a licensed
10    physician in Illinois.  If more  than  one  physician  shares
11    that  responsibility,  any of those physicians may act as the
12    attending physician under this Act.
13        "Close friend" means any person 18 years of age or  older
14    who  has  exhibited  special care and concern for the patient
15    and who presents an  affidavit  to  the  attending  physician
16    stating  that he or she (i) is a close friend of the patient,
17    (ii) is willing and able to become involved in the  patient's
18    health  care,  and  (iii) has maintained such regular contact
19    with the  patient  as  to  be  familiar  with  the  patient's
20    activities,  health,  and  religious  and moral beliefs.  The
21    affidavit  must  also  state  facts  and  circumstances  that
22    demonstrate that familiarity.
23        "Death"  means  when,  according  to   accepted   medical
24    standards,   there   is  (i)  an  irreversible  cessation  of
25    circulatory and respiratory functions or (ii) an irreversible
26    cessation of all functions of the entire brain, including the
27    brain stem.
28        "Decisional capacity" means the ability to understand and
29    appreciate  the  nature  and  consequences  of   a   decision
30    regarding   medical  treatment  or  forgoing  life-sustaining
31    treatment  and  the  ability  to  reach  and  communicate  an
32    informed  decision  in  the  matter  as  determined  by   the
33    attending physician.
34        "Forgo  life-sustaining  treatment"  means  to  withhold,
                            -13-           LRB9001282DJmbam01
 1    withdraw,  or terminate all or any portion of life-sustaining
 2    treatment with knowledge that the patient's death  is  likely
 3    to  result.
 4        "Guardian" means a court appointed guardian of the person
 5    who   serves   as  a  representative  of  a  minor  or  as  a
 6    representative of a person under legal disability.
 7        "Health care  facility"  means  a  type  of  health  care
 8    provider   commonly  known  by  a  wide  variety  of  titles,
 9    including but not limited  to,  hospitals,  medical  centers,
10    nursing  homes, rehabilitation centers, long term or tertiary
11    care  facilities,  and  other   facilities   established   to
12    administer  health  care and provide overnight stays in their
13    ordinary course of business or practice.
14        "Health care provider" means a person that  is  licensed,
15    certified, or otherwise authorized or permitted by the law of
16    this  State  to administer health care in the ordinary course
17    of business or practice of a profession, including,  but  not
18    limited  to,  physicians, nurses, health care facilities, and
19    any employee,  officer,  director,  agent,  or  person  under
20    contract with such a person.
21        "Imminent"   (as   in   "death   is  imminent")  means  a
22    determination made by the attending  physician  according  to
23    accepted  medical  standards  that  death  will  occur  in  a
24    relatively  short  period  of  time,  even if life-sustaining
25    treatment is initiated or continued.
26        "Life-sustaining treatment" means any medical  treatment,
27    procedure,  or  intervention  that,  in  the  judgment of the
28    attending  physician,  when  applied  to  a  patient  with  a
29    qualifying condition, would not be effective  to  remove  the
30    qualifying condition or would serve only to prolong the dying
31    process.   Those  procedures can include, but are not limited
32    to,   assisted   ventilation,   renal   dialysis,    surgical
33    procedures,  blood  transfusions,  and  the administration of
34    drugs, antibiotics, and artificial nutrition and hydration.
                            -14-           LRB9001282DJmbam01
 1        "Minor" means an  individual  who  is  not  an  adult  as
 2    defined in this Act.
 3        "Parent"  means  a  person who is the natural or adoptive
 4    mother or father of the child and whose parental rights  have
 5    not been terminated by a court of law.
 6        "Patient"  means  an  adult  or  minor individual, unless
 7    otherwise  specified,  under  the  care  or  treatment  of  a
 8    licensed physician or other health care provider.
 9        "Person" means an individual, a corporation,  a  business
10    trust,  a trust, a partnership, an association, a government,
11    a governmental subdivision or  agency,  or  any  other  legal
12    entity.
13        "Qualifying condition" means the existence of one or more
14    of the following conditions in a patient certified in writing
15    in  the  patient's  medical record by the attending physician
16    and by at least one other qualified physician:
17             (1)  "Terminal condition" means an illness or injury
18        for which there is no  reasonable  prospect  of  cure  or
19        recovery,  death  is  imminent,  and  the  application of
20        life-sustaining treatment would only  prolong  the  dying
21        process.
22             (2)  "Permanent  unconsciousness"  means a condition
23        that, to a high degree of  medical  certainty,  (i)  will
24        last  permanently,  without  improvement,  (ii)  in which
25        thought,    sensation,    purposeful    action,    social
26        interaction, and awareness of self  and  environment  are
27        absent,  and  (iii)  for  which  initiating or continuing
28        life-sustaining treatment,  in  light  of  the  patient's
29        medical condition, provides only minimal medical benefit.
30             (3)  "Incurable  or irreversible condition" means an
31        illness or injury (i) for which there  is  no  reasonable
32        prospect  of  cure or recovery, (ii) that ultimately will
33        cause  the  patient's  death  even   if   life-sustaining
34        treatment  is  initiated or continued, (iii) that imposes
                            -15-           LRB9001282DJmbam01
 1        severe pain or otherwise imposes an  inhumane  burden  on
 2        the  patient, and (iv) for which initiating or continuing
 3        life-sustaining treatment,  in  light  of  the  patient's
 4        medical condition, provides only minimal medical benefit.
 5        The   determination  that  a  patient  has  a  qualifying
 6    condition creates no presumption regarding the application or
 7    non-application of life-sustaining  treatment.   It  is  only
 8    after  a  determination  by  the attending physician that the
 9    patient  has  a  qualifying  condition  that  the   surrogate
10    decision   maker   may  consider  whether  or  not  to  forgo
11    life-sustaining treatment.   In  making  this  decision,  the
12    surrogate   shall   weigh  the  burdens  on  the  patient  of
13    initiating or continuing  life-sustaining  treatment  against
14    the benefits of that treatment.
15        "Qualified  physician"  means  a  physician  licensed  to
16    practice  medicine in all of its branches in Illinois who has
17    personally examined the patient.
18        "Surrogate decision maker" means an adult  individual  or
19    individuals  who  (i)  have  decisional  capacity,  (ii)  are
20    available  upon reasonable inquiry, (iii) are willing to make
21    medical  treatment  decisions  regarding  the   forgoing   of
22    life-sustaining  treatment  on  behalf of a patient who lacks
23    decisional capacity and is  diagnosed  as  suffering  from  a
24    qualifying   condition,   and  (iv)  are  identified  by  the
25    attending physician in accordance with the provisions of this
26    Act as the person or persons who are to make those  decisions
27    in accordance with the provisions of this Act.
28    (Source: P.A. 87-749; 88-670, eff. 12-2-94.)
29        (755 ILCS 40/15) (from Ch. 110 1/2, par. 851-15)
30        Sec.  15.   Applicability.   This Act applies to patients
31    who lack decisional capacity or who  and  have  a  qualifying
32    condition.  This Act does not apply to instances in which the
33    patient  has an operative and unrevoked living will under the
                            -16-           LRB9001282DJmbam01
 1    Illinois  Living  Will  Act,  an  operative   and   unrevoked
 2    declaration  for  mental  health  treatment  under the Mental
 3    Health  Treatment  Preferences   Declaration   Act,   or   an
 4    authorized  agent  under  a power of attorney for health care
 5    under the Illinois Power of Attorney Act  and  the  patient's
 6    condition  falls  within the coverage of the living will, the
 7    declaration for mental health  treatment,  or  the  power  of
 8    attorney  for  health  care.   In those instances, the living
 9    will, declaration for mental health treatment,  or  power  of
10    attorney  for health care, as the case may be, shall be given
11    effect according to  its  terms.   This  Act  does  apply  in
12    circumstances  in  which a patient has a qualifying condition
13    but the patient's condition does not fall within the coverage
14    of  the  living  will,  the  declaration  for  mental  health
15    treatment, or the power of attorney for health care.
16        Each health care  facility  shall  maintain  any  advance
17    directives  proffered  by  the  patient  or  other authorized
18    person, including a do not resuscitate order, a living  will,
19    a  declaration  for  mental  health  treatment, or a power of
20    attorney for health care, in the  patient's  medical  records
21    for  the  duration  of  the patient's stay. This Act does not
22    apply to patients without a qualifying  condition.   If  a  ,
23    unless the patient is an adult with decisional capacity, then
24    in  which  case  the  right  to  refuse  medical treatment or
25    life-sustaining treatment does not require the presence of  a
26    qualifying condition.
27    (Source: P.A. 87-749.)
28        (755 ILCS 40/20) (from Ch. 110 1/2, par. 851-20)
29        Sec. 20.  Private decision making process.
30        (a)  Decisions  whether  to  forgo life-sustaining or any
31    other form of medical treatment involving  an  adult  patient
32    with decisional capacity may be made by that adult patient.
33        (b)  Decisions whether to forgo life-sustaining treatment
                            -17-           LRB9001282DJmbam01
 1    on  behalf  of  a  patient  without  decisional  capacity are
 2    lawful, without resort to the courts or legal process, if the
 3    patient has a qualifying condition and if the  decisions  are
 4    made  in  accordance  with one of the following paragraphs in
 5    this subsection and otherwise meet the requirements  of  this
 6    Act:
 7             (1)  Decisions   whether  to  forgo  life-sustaining
 8        treatment on behalf of a minor or an  adult  patient  who
 9        lacks  decisional  capacity  may  be  made by a surrogate
10        decision  maker  or  makers  in  consultation  with   the
11        attending physician, in the order or priority provided in
12        Section  25.   A  surrogate  decision  maker  shall  make
13        decisions  for the adult patient conforming as closely as
14        possible to what the patient would have done or  intended
15        under  the  circumstances,  taking  into account evidence
16        that includes, but  is  not  limited  to,  the  patient's
17        personal,  philosophical, religious and moral beliefs and
18        ethical values relative to the purpose of life, sickness,
19        medical  procedures,   suffering,   and   death.    Where
20        possible,  the  surrogate shall determine how the patient
21        would have weighed the burdens and benefits of initiating
22        or  continuing  life-sustaining  treatment  against   the
23        burdens  and benefits of that treatment.  In the event an
24        unrevoked advance directive, such as  a  living  will,  a
25        declaration  for  mental  health treatment, or a power of
26        attorney for health care, is no longer  valid  due  to  a
27        technical   deficiency   or  is  not  applicable  to  the
28        patient's  condition,  that  document  may  be  used   as
29        evidence  of a patient's wishes.  The absence of a living
30        will, declaration for mental health treatment,  or  power
31        of  attorney  for  health care shall not give rise to any
32        presumption as to the patient's preferences regarding the
33        initiation or continuation of life-sustaining procedures.
34        If the adult patient's  wishes  are  unknown  and  remain
                            -18-           LRB9001282DJmbam01
 1        unknown  after  reasonable  efforts to discern them or if
 2        the patient is a minor, the decision shall be made on the
 3        basis of the patient's best interests  as  determined  by
 4        the   surrogate   decision  maker.   In  determining  the
 5        patient's best interests, the surrogate shall  weigh  the
 6        burdens  on  and benefits to the patient of initiating or
 7        continuing life-sustaining treatment against the  burdens
 8        and  benefits  of  that  treatment  and  shall  take into
 9        account any other information,  including  the  views  of
10        family  and  friends,  that  the surrogate decision maker
11        believes the patient would have considered if able to act
12        for herself or himself.
13             (2)  Decisions  whether  to  forgo   life-sustaining
14        treatment  on  behalf  of a minor or an adult patient who
15        lacks decisional  capacity,  but  without  any  surrogate
16        decision  maker  or  guardian  being available determined
17        after reasonable inquiry by the health care provider, may
18        be made by a court appointed guardian.  A court appointed
19        guardian shall be treated as a surrogate for the purposes
20        of this Act.
21        (b-5)  Decisions concerning medical treatment  on  behalf
22    of  a patient without decisional capacity are lawful, without
23    resort to the courts or legal process, if  the  patient  does
24    not  have a qualifying condition and if decisions are made in
25    accordance with one  of  the  following  paragraphs  in  this
26    subsection and otherwise meet the requirements of this Act:
27             (1)  Decisions   concerning   medical  treatment  on
28        behalf of a minor or adult patient who  lacks  decisional
29        capacity  may  be  made  by a surrogate decision maker or
30        makers in consultation with the attending  physician,  in
31        the  order  of  priority  provided in Section 25 with the
32        exception  that  decisions   to   forgo   life-sustaining
33        treatment   may  be  made  only  when  a  patient  has  a
34        qualifying condition.  A surrogate decision  maker  shall
                            -19-           LRB9001282DJmbam01
 1        make  decisions  for the patient conforming as closely as
 2        possible to what the patient would have done or  intended
 3        under  the  circumstances,  taking  into account evidence
 4        that includes, but  is  not  limited  to,  the  patient's
 5        personal, philosophical, religious, and moral beliefs and
 6        ethical values relative to the purpose of life, sickness,
 7        medical  procedures,  suffering, and death.  In the event
 8        an unrevoked advance directive, such as a living will,  a
 9        declaration  for  mental  health treatment, or a power of
10        attorney for health care, is no longer  valid  due  to  a
11        technical   deficiency   or  is  not  applicable  to  the
12        patient's  condition,  that  document  may  be  used   as
13        evidence  of a patient's wishes.  The absence of a living
14        will, declaration for mental health treatment,  or  power
15        of  attorney  for  health care shall not give rise to any
16        presumption as to the patient's preferences regarding any
17        process.  If the adult patient's wishes are  unknown  and
18        remain  unknown  after reasonable efforts to discern them
19        or if the patient is a minor, the decision shall be  made
20        on   the   basis  of  the  patient's  best  interests  as
21        determined  by  the   surrogate   decision   maker.    In
22        determining  the  patient's best interests, the surrogate
23        shall weigh the burdens on and benefits to the patient of
24        the treatment against the burdens and  benefits  of  that
25        treatment   and   shall   take  into  account  any  other
26        information, including the views of family  and  friends,
27        that  the  surrogate  decision maker believes the patient
28        would have considered if  able  to  act  for  herself  or
29        himself.
30             (2)  Decisions   concerning   medical  treatment  on
31        behalf of a minor or adult patient who  lacks  decisional
32        capacity,  but  without  any  surrogate decision maker or
33        guardian being available as determined  after  reasonable
34        inquiry  by  the  health  care provider, may be made by a
                            -20-           LRB9001282DJmbam01
 1        court appointed guardian.   A  court  appointed  guardian
 2        shall  be treated as a surrogate for the purposes of this
 3        Act.
 4        (c)  For the purposes of this Act, a patient or surrogate
 5    decision maker is presumed to have decisional capacity in the
 6    absence of actual notice to the contrary  without  regard  to
 7    advanced  age.  With  respect  to  a  patient, a diagnosis of
 8    mental illness or mental retardation, of itself, is not a bar
 9    to a determination of decisional capacity.   A  determination
10    that an adult patient lacks decisional capacity shall be made
11    by  the attending physician to a reasonable degree of medical
12    certainty.  The determination shall  be  in  writing  in  the
13    patient's  medical  record  and shall set forth the attending
14    physician's opinion regarding the cause, nature, and duration
15    of  the  patient's  lack  of  decisional  capacity.    Before
16    implementation of a decision by a surrogate decision maker to
17    forgo life-sustaining treatment, at least one other qualified
18    physician  must  concur  in  the  determination that an adult
19    patient   lacks   decisional   capacity.    The    concurring
20    determination  shall  be  made  in  writing  in the patient's
21    medical record after personal  examination  of  the  patient.
22    The  attending physician shall inform the patient that it has
23    been determined that the patient  lacks  decisional  capacity
24    and   that   a   surrogate  decision  maker  will  be  making
25    life-sustaining treatment decisions on behalf of the patient.
26    Moreover, the patient shall be informed of  the  identity  of
27    the  surrogate  decision maker and any decisions made by that
28    surrogate.   If  the  person  identified  as  the   surrogate
29    decision  maker  is  not  a  court appointed guardian and the
30    patient objects to the statutory surrogate decision maker  or
31    any  decision made by that surrogate decision maker, then the
32    provisions of this Act shall not apply.
33        (d)  A surrogate decision maker acting on behalf  of  the
34    patient  shall  express  decisions  to  forgo life-sustaining
                            -21-           LRB9001282DJmbam01
 1    treatment to the attending physician and  one  adult  witness
 2    who  is  at  least  18  years  of age.  This decision and the
 3    substance of any known discussion before making the  decision
 4    shall  be  documented  by  the  attending  physician  in  the
 5    patient's medical record and signed by the witness.
 6        (e)  The  existence  of  a  qualifying condition shall be
 7    documented in writing in the patient's medical record by  the
 8    attending  physician  and shall include its cause and nature,
 9    if known.   The  written  concurrence  of  another  qualified
10    physician is also required.
11        (f)  Once  the  provisions of this Act are complied with,
12    the attending physician shall thereafter  promptly  implement
13    the  decision to forgo life-sustaining treatment on behalf of
14    the patient unless he or  she  believes  that  the  surrogate
15    decision  maker  is  not acting in accordance with his or her
16    responsibilities under this Act, or is unable to  do  so  for
17    reasons of conscience or other personal views or beliefs.
18        (g)  In the event of a patient's death as determined by a
19    physician,  all  life-sustaining  treatment and other medical
20    care is to be terminated, unless  the  patient  is  an  organ
21    donor, in which case appropriate organ donation treatment may
22    be continued temporarily.
23    (Source: P.A. 87-749.)
24        (755 ILCS 40/25) (from Ch. 110 1/2, par. 851-25)
25        Sec. 25.  Surrogate decision making.
26        (a)  When  a patient has a qualifying condition and lacks
27    decisional capacity, the health care  provider  must  make  a
28    reasonable  inquiry as to the availability and authority of a
29    health care agent under the Powers  of  Attorney  for  Health
30    Care  Law.   When  no  health  care  agent  is authorized and
31    available, the health care provider must  make  a  reasonable
32    inquiry  as to the availability of possible surrogates listed
33    in items (1) through (4) of this subsection.   The  surrogate
                            -22-           LRB9001282DJmbam01
 1    decision  makers,  as  identified by the attending physician,
 2    are then authorized to make decisions as  follows:   (i)  for
 3    patients  who  lack  decisional  capacity  and  do not have a
 4    qualifying condition, medical treatment decisions may be made
 5    in  accordance with subsection (b-5) of Section 20; and  (ii)
 6    for  patients  who    lack  decisional  capacity  and  have a
 7    qualifying condition, medical treatment  decisions  including
 8    whether  to  forgo life-sustaining treatment on behalf of the
 9    patient  may  be  made  without  court  order   or   judicial
10    involvement in the following order of priority:
11             (1)  the patient's guardian of the person;
12             (2)  the patient's spouse;
13             (3)  any adult son or daughter of the patient;
14             (4)  either parent of the patient;
15             (5)  any adult brother or sister of the patient;
16             (6)  any adult grandchild of the patient;
17             (7)  a close friend of the patient;
18             (8)  the patient's guardian of the estate.
19        The  health care provider shall have the right to rely on
20    any of the above surrogates if the  provider  believes  after
21    reasonable inquiry that neither a health care agent under the
22    Powers  of  Attorney  for  Health Care Law nor a surrogate of
23    higher priority is available.
24        Where there are multiple surrogate decision makers at the
25    same priority  level  in  the  hierarchy,  it  shall  be  the
26    responsibility of those surrogates to make reasonable efforts
27    to  reach  a  consensus as to their decision on behalf of the
28    patient regarding the forgoing of life-sustaining  treatment.
29    If 2 or more surrogates who are in the same category and have
30    equal  priority indicate to the attending physician that they
31    disagree about the health care matter at issue, a majority of
32    the available persons in that category (or  the  parent  with
33    custodial  rights) shall control, unless the minority (or the
34    parent  without  custodial  rights)  initiates   guardianship
                            -23-           LRB9001282DJmbam01
 1    proceedings  in  accordance with the Probate Act of 1975.  No
 2    health care provider or other  person  is  required  to  seek
 3    appointment of a guardian.
 4        (b)  After  a  surrogate  has  been identified, the name,
 5    address, telephone number, and relationship of that person to
 6    the patient  shall  be  recorded  in  the  patient's  medical
 7    record.
 8        (c)  Any surrogate who becomes unavailable for any reason
 9    may  be  replaced by applying the provisions of Section 25 in
10    the same manner as for the initial choice of surrogate.
11        (d)  In the event an individual of a higher  priority  to
12    an  identified  surrogate becomes available and willing to be
13    the surrogate, the individual with  higher  priority  may  be
14    identified as the surrogate.  In the event an individual in a
15    higher,  a lower, or the same priority level or a health care
16    provider  seeks  to  challenge  the  priority   of   or   the
17    life-sustaining   treatment   decision   of   the  recognized
18    surrogate decision maker, the challenging party may  initiate
19    guardianship  proceedings  in accordance with the Probate Act
20    of 1975.
21        (e)  The surrogate decision maker  shall  have  the  same
22    right  as  the  patient  to  receive  medical information and
23    medical records and to consent to disclosure.
24    (Source: P.A. 87-749.)".

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