Illinois General Assembly - Full Text of SB1803
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Full Text of SB1803  103rd General Assembly


Sen. Laura M. Murphy

Filed: 3/24/2023





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2    AMENDMENT NO. ______. Amend Senate Bill 1803 by replacing
3everything after the enacting clause with the following:
4    "Section 5. The Department of Natural Resources
5(Conservation) Law of the Civil Administrative Code of
6Illinois is amended by adding Section 805-72 as follows:
7    (20 ILCS 805/805-72 new)
8    Sec. 805-72. Lyme Disease Innovation Program.
9    (a) The Department shall consult with the Department of
10Agriculture, the Department of Public Health, and members of
11the University of Illinois' INHS Medical Entomology Program to
12establish the Lyme Disease Innovation Program no later than
13one year after the effective date of this amendatory Act of the
14103rd General Assembly. The Department shall contract with an
15Illinois not-for-profit organization whose purpose is to raise
16awareness of tick-borne diseases with the public and the



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1medical community to operate the Program. The Program's
2purpose is to raise awareness with the public and to assist
3persons at risk of Lyme disease and other tick-borne diseases
4with education and awareness materials and campaigns while
5developing evidence-based approaches that are cost-effective.
6    (b) The Program shall implement a statewide interagency
7and multipronged approach to combat Lyme disease and other
8tick-borne diseases in Illinois, including adopting an
9evidence-based model that recognizes the key roles that
10patients, advocates, and not-for-profit organizations have in
11fighting Lyme disease and tick-borne diseases. The Program's
12objectives include issuing grants, subject to the approval of
13the Department, to State agencies and Illinois not-for profit
14organizations from moneys in the Lyme Disease Awareness Fund
15and other appropriations for the following purposes:
16        (1) Bringing awareness of Lyme disease and tick-borne
17    diseases by any one or more of the following methods:
18            (A) creating innovative ideas and collaborations
19        for raising awareness about risks and prevention;
20            (B) amplifying and improving access to essential
21        information supporting innovations in prevention,
22        education, and care with open data and science;
23            (C) fostering the development of new,
24        community-based education and prevention efforts; and
25            (D) using programs, website advertising,
26        pamphlets, or other methods to increase the awareness



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1        of Lyme disease and tick-borne diseases;
2        (2) Engaging stakeholders to facilitate
3    patient-centered innovations by (i) building trust among
4    stakeholders through listening sessions, roundtables, and
5    other learning approaches that ground innovations in lived
6    experience, (ii) engaging stakeholders in identifying
7    current areas of need to promote targeted innovations that
8    will make real-world improvements in quality of care, and
9    (iii) gaining insight into patient needs and priorities
10    through stakeholders' collective wisdom and applying that
11    wisdom in shaping future innovation challenges and events.
12        (3) Advancing stakeholder driven interdisciplinary and
13    interagency collaborations by providing resources to
14    not-for-profit organizations whose purpose is to raise
15    awareness of tick-borne diseases with the public and the
16    medical community in order to (i) facilitate the
17    stakeholder engagement and collaborations and
18    patient-centered innovations and support groups, (ii)
19    identify ways to better collect and share data while
20    raising awareness of tick-borne illnesses, and (iii)
21    assist with the development of outreach and education
22    materials and approaches for State agencies.
23        (4) The University of Illinois' INHS Medical
24    Entomology Program maintaining a passive tick and
25    tick-borne pathogen surveillance program, based on ticks
26    contributed by the Illinois public, and including tick



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1    identifications and disease-agent testing of a subset of
2    identified ticks; compiling evidence and conducting
3    research on tick bite prevention and risk of tick and
4    tick-borne pathogen exposure; and providing evidence,
5    results, and analysis and insight from both the passive
6    surveillance program, on tick species and tick-borne
7    disease-agent distributions and diversity in the State,
8    and its related research on tick bite exposure and
9    prevention, to support the Lyme Disease Innovation Program
10    objectives.
11    (c) The Program shall be funded through moneys deposited
12into the Lyme Disease Awareness Fund and other appropriations.
13The not-for-profit organization contracted with to operate the
14Program shall be paid, subject to the approval of the
15Department, for its operation of the Program from moneys
16deposited into the Fund or from other appropriations.
17    The University of Illinois' Prairie Research Institute
18shall be paid, subject to the approval of the Department, for
19the INHS Medical Entomology Program's operation of a passive
20tick surveillance and research program from moneys deposited
21into the Fund or from other appropriations.
22    (d) The Department must adopt rules to implement this
24    Section 90. The State Finance Act is amended by adding
25Section 5.990 as follows:



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1    (30 ILCS 105/5.990 new)
2    Sec. 5.990. The Lyme Disease Awareness Fund.
3    Section 99. Effective date. This Act takes effect upon
4becoming law.".