Rep. Luis Arroyo

Filed: 5/7/2019





10100HB0143ham001LRB101 02915 CPF 59803 a


2    AMENDMENT NO. ______. Amend House Bill 143 by replacing
3everything after the enacting clause with the following:
4    "Section 5. The State Finance Act is amended by adding
5Sections 5.891 and 6z-107 as follows:
6    (30 ILCS 105/5.891 new)
7    Sec. 5.891. The Schaaf-Yang Syndrome Fund.
8    (30 ILCS 105/6z-107 new)
9    Sec. 6z-107. The Schaaf-Yang Syndrome Fund.
10    (a) The Schaaf-Yang Syndrome Research Fund is created as a
11special fund in the State treasury. Subject to appropriation,
12moneys in the Fund shall be used by the Department of Public
13Health to make grants to public or private not-for-profit
14entities for the purpose of conducting Schaaf-Yang Syndrome
15research. For the purposes of this Section, "research"



10100HB0143ham001- 2 -LRB101 02915 CPF 59803 a

1includes, but is not limited to, expenditures to develop and
2advance the understanding, techniques, and modalities
3effective in early detection, prevention, cure, screening, and
4treatment of Schaaf-Yang Syndrome and may include clinical
5trials. The grant funds may not be used for institutional
6overhead costs, indirect costs, other organizational levies,
7or costs of community-based support services.
8    (b) As soon as practical after the effective date of this
9amendatory Act of the 101st General Assembly, the State
10Treasurer shall transfer $300,000 from the General Revenue Fund
11to the Schaaf-Yang Syndrome Fund.
12    Section 99. Effective date. This Act takes effect July 1,