99TH GENERAL ASSEMBLY
State of Illinois
2015 and 2016
Introduced , by Rep. Sonya M. Harper
SYNOPSIS AS INTRODUCED:
Creates the Rare Disease Commission Act. Provides for the creation of
the Rare Disease Commission. Defines terms. Provides that initial
appointments shall be made by February 1, 2017. Provides required criteria
and considerations for appointees and nominations to the Commission.
Includes provisions regarding the terms, vacancies, and compensation for
the Commission's membership. Requires that the Commission meet at least
quarterly and submit an annual report due no later than December 31 of
every year to the General Assembly. Provides that the Department of Public
Health shall provide administrative and other support to the Commission.
Effective January 1, 2017.
|FISCAL NOTE ACT MAY APPLY|
A BILL FOR
|HB4576||LRB099 17088 MJP 41446 b|
AN ACT concerning health.
Be it enacted by the People of the State of Illinois,
represented in the General Assembly:
This Act may be cited as the
Disease Commission Act.
As used in this Act, unless the
context requires otherwise:
"Chairperson" means the Chairperson of the Rare Disease
"Commission" means the Rare Disease Commission.
"Rare disease" means a disease that affects less than
200,000 people in the United States.
"Relative" means a spouse, parent, parent-in-law, sibling,
sibling-in-law, child, child-in-law, grandparent, aunt, or
"Vice-Chairperson" means the Vice-Chairperson of the Rare
Commission created; membership.
(a) There is created the Rare Disease Commission to advise
the State on issues pertaining to the care and treatment of
individuals with rare diseases.
(b) The Commission shall be composed of 15 members: