Full Text of HR1007 93rd General Assembly
HR1007 93RD GENERAL ASSEMBLY
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HR1007 |
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| HOUSE RESOLUTION
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| WHEREAS, Disability is a natural part of the human | 3 |
| experience that does not diminish the right of individuals with | 4 |
| developmental disabilities to live independently, to exert | 5 |
| control and choice over their own lives, and to fully | 6 |
| participate in and contribute to their communities through full | 7 |
| inclusion and participation in the economic, political, | 8 |
| social, cultural, and educational mainstream of their chosen | 9 |
| community and United States society; and
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| WHEREAS, People who experience developmental disabilities, | 11 |
| and their families, ask quite little, given their challenges; | 12 |
| one thing that is critical to them is the confidence that, when | 13 |
| needed, they will have access to the supports and services that | 14 |
| will ameliorate a crisis or trauma and that will provide | 15 |
| long-term stability and quality of life for them; confidence at | 16 |
| this level requires a long-term public policy that guarantees | 17 |
| that needed opportunities for supports and services are | 18 |
| available each year; it also requires the confidence that the | 19 |
| supports and services that are available are responsive to the | 20 |
| needs of the individual; and | 21 |
| WHEREAS, Individuals with developmental disabilities | 22 |
| should be supported individually, and individual choices and | 23 |
| preferences should be the primary source of direction for | 24 |
| services and supports they receive; and | 25 |
| WHEREAS, Federal law and recent court cases have clearly | 26 |
| defined the State's responsibility to support each person's | 27 |
| choice to live in the community of his or her choice rather | 28 |
| than in an institutional facility; and | 29 |
| WHEREAS, The United States Supreme Court decision in | 30 |
| Olmstead ex rel. Zimring v. L.C., 119 S.Ct. 2176 (1999), held | 31 |
| that persons with disabilities have a right to receive |
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HR1007 |
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| State-funded services and programs in the most inclusive | 2 |
| setting appropriate to meet their needs and to participate in | 3 |
| community life to the fullest extent possible; and | 4 |
| WHEREAS, The State of Illinois, through the Department of | 5 |
| Human Services, intends to incur capital and operational costs | 6 |
| to develop and operate 4 10-bed intermediate care facilities | 7 |
| for the developmentally disabled on the grounds of the former | 8 |
| Lincoln Developmental Center, which is physically segregated | 9 |
| from the surrounding, mainstream community; and | 10 |
| WHEREAS, This Department development project is being | 11 |
| designed and negotiated without any direct involvement of the | 12 |
| 40 people who experience developmental disabilities who may be | 13 |
| asked to live in that institutional facility complex; and | 14 |
| WHEREAS, The development of living environments and | 15 |
| program components in such facilities without the direct | 16 |
| involvement of the people who experience developmental | 17 |
| disabilities is in direct conflict with long-standing and | 18 |
| well-articulated Department policy on person-centered planning | 19 |
| and very clear and well-articulated national standards of best | 20 |
| practice for the development of supports and services for | 21 |
| people who experience developmental disabilities; and | 22 |
| WHEREAS, The aforementioned Department project perpetuates | 23 |
| the current supply-driven approach to services, which is not | 24 |
| based on what people who experience developmental disabilities | 25 |
| articulate as their need but which in actuality seeks to | 26 |
| redress the needs of other, non-disabled people or communities; | 27 |
| and | 28 |
| WHEREAS, The aforementioned Department project perpetuates | 29 |
| the over-reliance on State-operated developmental centers to | 30 |
| provide economic development rather than serve individuals | 31 |
| with developmental needs; and |
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HR1007 |
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| WHEREAS, The Illinois developmental disabilities system | 2 |
| has been demonstrated to have institutional and congregate | 3 |
| capacities that are significantly above the national norm and | 4 |
| inconsistent with consumer demand, which forces those same | 5 |
| individuals with developmental disabilities and their families | 6 |
| to choose services they don't need or don't want or to not be | 7 |
| able to access services at all; and | 8 |
| WHEREAS, Recent national experience demonstrates that | 9 |
| economies of scale assumed to be associated with large | 10 |
| institutional facilities do not exist or are not equal to | 11 |
| related reductions in costs that are offered by supporting the | 12 |
| choice of people who experience developmental disabilities to | 13 |
| access appropriate community care; and | 14 |
| WHEREAS, The supporting access to appropriate supports and | 15 |
| services in the community, developed and designed in response | 16 |
| to consumer choice, represents sound public policy because it | 17 |
| is the right thing to do for citizens who experience | 18 |
| developmental disabilities and are vulnerable and | 19 |
| disadvantaged and experience difficulties and because the | 20 |
| direct and indirect benefits to the community as a whole are | 21 |
| both positive and tangible; and | 22 |
| WHEREAS, The aforementioned consumer-driven approach would | 23 |
| be more effective and efficient and would support existing, | 24 |
| sound public policy and a cohesive policy and planning | 25 |
| structure; and | 26 |
| WHEREAS, Our nation and the State of Illinois must offer | 27 |
| the opportunity for and support all people who experience | 28 |
| developmental disabilities to realize their own vision for | 29 |
| their lives; to accomplish this, families, friends, allies, | 30 |
| communities, provider agencies, professionals, advocates, and | 31 |
| government alike must work in partnership to do whatever it |
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| takes to enable each individual to realize her or his unique | 2 |
| vision, and this will happen only when public policy decisions | 3 |
| are organized first and foremost around the choice and needs of | 4 |
| individual citizens who experience developmental disabilities; | 5 |
| and | 6 |
| WHEREAS, The State has a fundamental responsibility to | 7 |
| allow people with developmental disabilities now residing in | 8 |
| communities and State-operated facilities to determine where | 9 |
| they want to live based upon sound principles of | 10 |
| person-centered planning; therefore, be it | 11 |
| RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE | 12 |
| NINETY-THIRD GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that we | 13 |
| strongly urge the Governor, the executive and legislative | 14 |
| branches of State government, and the Illinois Department of | 15 |
| Human Services to do the following:
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| (1) Take the immediate actions necessary to redirect | 17 |
| and utilize existing appropriations in the capital and | 18 |
| operating budgets and the proposed FY 05 executive budgets | 19 |
| of the Capital Development Board and the Illinois | 20 |
| Department of Human Services that are earmarked for the | 21 |
| Lincoln Developmental Center to support 40 individuals | 22 |
| with developmental disabilities; | 23 |
| (2) Develop a model approach consistent with national | 24 |
| best practice for person-centered and consumer-directed | 25 |
| planning and service delivery to identify and develop the | 26 |
| living environments, supports, and services for the 40 | 27 |
| identified individuals; | 28 |
| (3) Consult with a nationally recognized expert in the | 29 |
| field of developmental disabilities, person-centered and | 30 |
| consumer-directed service planning and service delivery, | 31 |
| and the community-based systems of services to assist the | 32 |
| State in formulating the model approach and to oversee the | 33 |
| development of person-centered and consumer-directed | 34 |
| individualized support plans and appropriate funding |
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| allocations, using the following principles: | 2 |
| (a) People and families must participate as valued | 3 |
| and empowered partners in all decision-making; | 4 |
| opinions of individuals and families are continuously | 5 |
| sought to inform policy making and system improvement; | 6 |
| (b) Family members, friends, and members of the | 7 |
| community can play an important role in enhancing the | 8 |
| lives of individuals with developmental disabilities, | 9 |
| especially when the family members, friends, and | 10 |
| community members are provided with the necessary | 11 |
| community services, individualized supports, and other | 12 |
| forms of assistance; | 13 |
| (c) Each person shall have the authority to define | 14 |
| and pursue his or her own vision; individuals with | 15 |
| developmental disabilities and family members feel | 16 |
| welcome to express their ideas, needs, and | 17 |
| preferences, as well as lead and direct the development | 18 |
| of their support plans with assistance, as needed, from | 19 |
| service coordinators, guardians, and other similar | 20 |
| persons; | 21 |
| (d) Self-determination or consumer-direction is | 22 |
| the organizing principle for service planning and | 23 |
| delivery; people and families are entitled to freedom, | 24 |
| authority, and support to control, direct, and manage | 25 |
| their own services, supports, and funding; individuals | 26 |
| have the capacity and the right to choose where and | 27 |
| with whom they live; | 28 |
| (e) Personal relationships and community | 29 |
| membership are valued; people have support to take part | 30 |
| in social, spiritual, recreational, and community | 31 |
| activities of their choice; | 32 |
| (f) All networks and systems of support must | 33 |
| collaborate in support of the person's vision; people | 34 |
| have one plan that pulls together all sources of paid, | 35 |
| generic, and natural supports in pursuit of their | 36 |
| personal vision; and |
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| (g) There must be resolute, continuous commitment | 2 |
| to achieve excellence in all dimensions of supporting | 3 |
| individuals and families; | 4 |
| (4) Demonstrate to individuals with developmental | 5 |
| disabilities and their families that there is a commitment | 6 |
| to long-range public policy goals that do not have an | 7 |
| institutional bias, and that this commitment offers as a | 8 |
| goal appropriate, quality, cost-effective supports and | 9 |
| services in sufficient quality to meet their needs, is | 10 |
| based solely on the direct articulation of needs and choice | 11 |
| by consumers, and results in a demand-driven system of | 12 |
| services and supports; | 13 |
| (5) Demonstrate the State's commitment to make related | 14 |
| public policy decisions that are consistent with | 15 |
| long-range strategic goals for people who experience | 16 |
| developmental disabilities that are developed in | 17 |
| partnership with people with developmental disabilities; | 18 |
| and | 19 |
| (6) File a report consistent with this Resolution and | 20 |
| paragraphs (1) through (5) with the House of | 21 |
| Representatives on or before December 31, 2004; and be it | 22 |
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| RESOLVED, That we urge the Department of Human Services and | 24 |
| the Administration to cooperate in taking the actions set forth | 25 |
| in this Resolution; and be it further
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| RESOLVED, That copies of this Resolution be sent to the | 27 |
| Office of the Governor, the Secretary of the Department of | 28 |
| Human Services, the Director of the Office of Management and | 29 |
| Budget, and the Secretary of the Senate.
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