Illinois General Assembly - Full Text of SB1803
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Full Text of SB1803  103rd General Assembly




SB1803 EnrolledLRB103 27408 AWJ 57003 b

1    AN ACT concerning State government.
2    Be it enacted by the People of the State of Illinois,
3represented in the General Assembly:
4    Section 5. The Department of Natural Resources
5(Conservation) Law of the Civil Administrative Code of
6Illinois is amended by adding Section 805-72 as follows:
7    (20 ILCS 805/805-72 new)
8    Sec. 805-72. Lyme Disease Innovation Program.
9    (a) The Department shall consult with the Department of
10Agriculture, the Department of Public Health, and members of
11the University of Illinois' INHS Medical Entomology Program to
12establish the Lyme Disease Innovation Program no later than
13one year after the effective date of this amendatory Act of the
14103rd General Assembly. The Department shall contract with an
15Illinois not-for-profit organization whose purpose is to raise
16awareness of tick-borne diseases with the public and the
17medical community to operate the Program. The Program's
18purpose is to raise awareness with the public and to assist
19persons at risk of Lyme disease and other tick-borne diseases
20with education and awareness materials and campaigns while
21developing evidence-based approaches that are cost-effective.
22    (b) The Program shall implement a statewide interagency
23and multipronged approach to combat Lyme disease and other



SB1803 Enrolled- 2 -LRB103 27408 AWJ 57003 b

1tick-borne diseases in Illinois, including adopting an
2evidence-based model that recognizes the key roles that
3patients, advocates, and not-for-profit organizations have in
4fighting Lyme disease and tick-borne diseases. The Program's
5objectives include issuing grants, subject to the approval of
6the Department, to State agencies and Illinois not-for profit
7organizations from moneys in the Lyme Disease Awareness Fund,
8which is hereby established as a special fund in the State
9treasury, and other appropriations for the following purposes:
10        (1) Bringing awareness of Lyme disease and tick-borne
11    diseases by any one or more of the following methods:
12            (A) creating innovative ideas and collaborations
13        for raising awareness about risks and prevention;
14            (B) amplifying and improving access to essential
15        information supporting innovations in prevention,
16        education, and care with open data and science;
17            (C) fostering the development of new,
18        community-based education and prevention efforts; and
19            (D) using programs, website advertising,
20        pamphlets, or other methods to increase the awareness
21        of Lyme disease and tick-borne diseases;
22        (2) Engaging stakeholders to facilitate
23    patient-centered innovations by (i) building trust among
24    stakeholders through listening sessions, roundtables, and
25    other learning approaches that ground innovations in lived
26    experience, (ii) engaging stakeholders in identifying



SB1803 Enrolled- 3 -LRB103 27408 AWJ 57003 b

1    current areas of need to promote targeted innovations that
2    will make real-world improvements in quality of care, and
3    (iii) gaining insight into patient needs and priorities
4    through stakeholders' collective wisdom and applying that
5    wisdom in shaping future innovation challenges and events.
6        (3) Advancing stakeholder driven interdisciplinary and
7    interagency collaborations by providing resources to
8    not-for-profit organizations whose purpose is to raise
9    awareness of tick-borne diseases with the public and the
10    medical community in order to (i) facilitate the
11    stakeholder engagement and collaborations and
12    patient-centered innovations and support groups, (ii)
13    identify ways to better collect and share data while
14    raising awareness of tick-borne illnesses, and (iii)
15    assist with the development of outreach and education
16    materials and approaches for State agencies.
17        (4) The University of Illinois' INHS Medical
18    Entomology Program maintaining a passive tick and
19    tick-borne pathogen surveillance program, based on ticks
20    contributed by the Illinois public, and including tick
21    identifications and disease-agent testing of a subset of
22    identified ticks; compiling evidence and conducting
23    research on tick bite prevention and risk of tick and
24    tick-borne pathogen exposure; and providing evidence,
25    results, and analysis and insight from both the passive
26    surveillance program, on tick species and tick-borne



SB1803 Enrolled- 4 -LRB103 27408 AWJ 57003 b

1    disease-agent distributions and diversity in the State,
2    and its related research on tick bite exposure and
3    prevention, to support the Lyme Disease Innovation Program
4    objectives.
5    (c) The Program shall be funded through moneys deposited
6into the Lyme Disease Awareness Fund and other appropriations.
7The not-for-profit organization contracted with to operate the
8Program shall be paid, subject to the approval of the
9Department, for its operation of the Program from moneys
10deposited into the Fund or from other appropriations.
11    The University of Illinois' Prairie Research Institute
12shall be paid, subject to the approval of the Department, for
13the INHS Medical Entomology Program's operation of a passive
14tick surveillance and research program from moneys deposited
15into the Fund or from other appropriations.
16    (d) The Department must adopt rules to implement this
18    (e) The requirements of this Section are subject to
19appropriation by the General Assembly being made to the
20Department to implement the requirements.
21    Section 90. The State Finance Act is amended by adding
22Section 5.990 as follows:
23    (30 ILCS 105/5.990 new)
24    Sec. 5.990. The Lyme Disease Awareness Fund.



SB1803 Enrolled- 5 -LRB103 27408 AWJ 57003 b

1    Section 99. Effective date. This Act takes effect upon
2becoming law.