Illinois General Assembly - HB4576Witness Slips

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Witness Slips For HB4576 99th General Assembly

HB4576
House Amendment 001 Senate Amendment 001 Senate Amendment 002
Bill Status

Legislation: HB4576

Proponents: 55	Opponents: 1	No Position: 1

Name	Firm, Business Or Agency	Representing
Hearing Date and Time: Public Health (S) 5/10/2016 2:00 PM
Ann Weaver	NORD	National Organization for Rare Disorders
Bentley Fletcher	NA	Lukas Fletcher Shwachman Diamond Syndrome
Ed Peck	Sanofi US	Sanofi US
Greg Fletcher	NA	Lukas Fletcher ShwachmanDiamond Syndrome
Jamie Fletcher	NA	Lukas Fletcher Shwachman Diamond Syndrome
Marilyn Vetter	Horizon Pharma	Horizon Pharma
Mary Milano	Guardianship and Advocacy Commission	Guardianship and Advocacy Commission
Hearing Date and Time: Public Health (S) 5/3/2016 3:00 PM
Mary Milano	Guardianship and Advocacy Commission	Guardianship and Advocacy comission
Hearing Date and Time: Human Services (H) 4/5/2016 8:00 AM
Allan Higens	Self	Self
Angie Tefteller	rare disease
Ann Weaver	National Orgaization for Rare DIsorders	NORD
Ashley Mangan	none	self
Bentley Fletcher	na
Beth Blomberg	self
candace laudadio	self
Caroline Hartenberger	self
Christina	Self
Diane Hettasch	Hettasch Household
Ellyn Kodroff	CURED nfp
Erin Brodnick	Adrenal Insufficiency Illinois
Greg Fletcher	none	Rare Disease Commission
Gregory A Fletcher	na
Jaclyn Trujillo	self	self
Jamie Fletcher	na
Jamie Fletcher	none	Rare Disease Commission
jennifer armetta	self	self
Jennifer Lubeck	self	self
Jessica Dauphinais	Na	Na
Joanne Kocourek	Congenital Central Hypoventilation Syndrome Family Network
Jody Prunty	Parent of daughter with Rare Disorder
Joel Erickson	Self	Self
Joseph Godinez	none	self
Joseph Popa	Self	Self
Kate Drury	PANDAS PANS Advocacy and Support	Self
Kelly sindowski	Self	Self
Kristen Recchia	Self	Self
Kristina Hall	none
Lauren Schrero	Self
Lucijana Arman-Zubic	home
Michele Guadalupe	None	For the Fletcher family
Michelle Lynn Godinez	none	self
Rachel Walcher	Na	A person who lives with multiple Rare disease.
Rebecca Lichucki	Parent of a child with a rare disease
Sherry Healey	Self	Parent of young adult
Silvia Martinez	Self	Self
Stephanie Wyatt	Rare disease advocacy group	Rare Disease Advocacy Group
Sue Landgraf	Cystic Fibrosis Research, Inc.	Cystic Fibrosis Research, Inc. (CFRI)
Swapna Kakani	Swapna Kakani
Tammy Cheever	Self, Mother of a 9 yr. old little boy with PANDAS
Tim Boyd	National Organization for Rare Disorders	National Organization for Rare Disorders
Tim Patterson	Individual
Timothy Weaver	NA	Self
Vanessa Baier	Self	Self
Wendy Nawara	PANDAS PANS Advocacy and Support	PANDAS PANS Advocacy and Support
William D Hartenberger	self

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