Illinois General Assembly - Bill Status for SB1105
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 Bill Status of SB1105  102nd General Assembly


Short Description:  DHFS-PEDIATRIC PALLIATIVE CARE

Senate Sponsors
Sen. Dale A. Righter - John F. Curran - Donald P. DeWitte - Julie A. Morrison and Laura Fine

House Sponsors
(Rep. Jim Durkin - Tom Demmer - Charles Meier and Robyn Gabel)

Last Action
DateChamber Action
  1/13/2021SenateSession Sine Die

Statutes Amended In Order of Appearance
5 ILCS 810/1


Synopsis As Introduced
Amends the Seizure and Forfeiture Reporting Act. Makes a technical change in a Section concerning the short title.

Senate Floor Amendment No. 1
Deletes reference to:
5 ILCS 810/1
Adds reference to:
305 ILCS 60/5
305 ILCS 60/10
305 ILCS 60/15
305 ILCS 60/20
305 ILCS 60/25
305 ILCS 60/30
305 ILCS 60/35
305 ILCS 60/37 new
305 ILCS 60/40
305 ILCS 60/45
305 ILCS 60/3 rep.

Replaces everything after the enacting clause. Amends the Pediatric Palliative Care Act. Repeals a provision that made the Act inoperative on and after July 1, 2012. Makes changes to the legislative findings. Provides that the General Assembly finds that each year, approximately 1,500 (rather than 1,185) Illinois children are diagnosed with a serious illness (rather than with a potentially life-limiting illness); and that community-based pediatric palliative services have been shown to keep children out of the hospital by managing many symptoms in the home setting, thereby improving childhood quality of life while maintaining budget neutrality. Requires the Department of Healthcare and Family Services to develop a pediatric palliative care program (rather than a pediatric palliative care pilot program) under which a qualifying child may receive community-based pediatric palliative care from a trained interdisciplinary team and may also choose to continue to pursue aggressive curative or disease-directed treatments for a serious (rather than a potentially life-limiting) illness under the benefits available under Article V of the Illinois Public Aid Code. Defines a qualifying child to be a person under the age of 19 (rather than 18) who is enrolled in the medical assistance program under the Illinois Public Aid Code and who suffers from a serious illness (rather than a potentially life-limiting medical condition). Requires the Department to apply to the federal Centers for Medicare and Medicaid Services for a State Plan amendment to implement the program. Requires the Department to implement the State plan amendment within 12 months of the date of federal approval. Prohibits the Department from drafting any rules in contravention of this timetable for program development and implementation. Removes all provisions concerning application for a federal Medicaid waiver program authorized under the Social Security Act. Expands the list of serious illnesses (rather than medical conditions) that render a person eligible for pediatric palliative care to include any other serious illness that the Department determines to be appropriate. In a provision concerning authorized providers, provides that at a minimum, a participating provider must house a pediatric interdisciplinary team that includes: (i) a physician, acting as the program medical director, who is board certified or board eligible in pediatrics or hospice and palliative medicine; (ii) a registered nurse; and (iii) a licensed social worker with a background in pediatric care. Requires all members of the pediatric interdisciplinary team to meet criteria the Department may establish by rule, including demonstrated expertise in pediatric palliative care (rather than requiring all members of the pediatric interdisciplinary team to submit to the Department proof of pediatric End-of-Life Nursing Education Curriculum (Pediatric ELNEC Training) or an equivalent). Expands the list of reimbursable services offered under the program to include any other services that the Department determines to be appropriate. Requires the Department, in consultation with interested stakeholders, to establish standards for and provide technical assistance to managed care organizations, as defined in the Illinois Public Aid Code, to ensure the delivery of pediatric palliative care services. Contains provisions concerning reporting requirements and criteria a case manager must meet for demonstrated expertise in pediatric palliative care.

Actions 
DateChamber Action
  1/31/2019SenateFiled with Secretary by Sen. William E. Brady
  1/31/2019SenateFirst Reading
  1/31/2019SenateReferred to Assignments
  2/20/2019SenateAssigned to Executive
  3/6/2019SenateDo Pass Executive; 016-000-000
  3/6/2019SenatePlaced on Calendar Order of 2nd Reading March 7, 2019
  3/7/2019SenateSecond Reading
  3/7/2019SenatePlaced on Calendar Order of 3rd Reading March 12, 2019
  4/3/2019SenateChief Sponsor Changed to Sen. Dale A. Righter
  4/5/2019SenateSenate Floor Amendment No. 1 Filed with Secretary by Sen. Dale A. Righter
  4/5/2019SenateSenate Floor Amendment No. 1 Referred to Assignments
  4/9/2019SenateSenate Floor Amendment No. 1 Assignments Refers to Human Services
  4/9/2019SenateAdded as Chief Co-Sponsor Sen. John F. Curran
  4/9/2019SenateAdded as Chief Co-Sponsor Sen. Donald P. DeWitte
  4/9/2019SenateAdded as Chief Co-Sponsor Sen. Julie A. Morrison
  4/9/2019SenateSenate Floor Amendment No. 1 Recommend Do Adopt Human Services; 008-000-000
  4/9/2019SenateAdded as Co-Sponsor Sen. Laura Fine
  4/10/2019SenateRecalled to Second Reading
  4/10/2019SenateSenate Floor Amendment No. 1 Adopted; Righter
  4/10/2019SenatePlaced on Calendar Order of 3rd Reading
  4/10/2019SenateThird Reading - Passed; 053-000-000
  4/10/2019HouseArrived in House
  4/10/2019HouseChief House Sponsor Rep. Jim Durkin
  4/10/2019HouseFirst Reading
  4/10/2019HouseReferred to Rules Committee
  4/24/2019HouseAssigned to Appropriations-Human Services Committee
  4/29/2019HouseAdded Alternate Chief Co-Sponsor Rep. Tom Demmer
  5/9/2019HouseAdded Alternate Chief Co-Sponsor Rep. Charles Meier
  5/9/2019HouseDo Pass / Short Debate Appropriations-Human Services Committee; 015-000-000
  5/9/2019HousePlaced on Calendar 2nd Reading - Short Debate
  5/9/2019HouseAdded Alternate Co-Sponsor Rep. Robyn Gabel
  5/14/2019HouseSecond Reading - Short Debate
  5/14/2019HousePlaced on Calendar Order of 3rd Reading - Short Debate
  5/16/2019HouseRecalled to Second Reading - Short Debate
  5/16/2019HouseHeld on Calendar Order of Second Reading - Short Debate
  5/17/2019HouseHouse Floor Amendment No. 1 Filed with Clerk by Rep. Jim Durkin
  5/17/2019HouseHouse Floor Amendment No. 1 Referred to Rules Committee
  5/20/2019HouseHouse Floor Amendment No. 1 Rules Refers to Appropriations-Human Services Committee
  5/24/2019HouseFinal Action Deadline Extended-9(b) May 31, 2019
  5/31/2019HouseFinal Action Deadline Extended-9(b) June 30, 2019
  6/28/2019HouseRule 19(a) / Re-referred to Rules Committee
  6/28/2019HouseHouse Floor Amendment No. 1 Rule 19(c) / Re-referred to Rules Committee
  1/13/2021SenateSession Sine Die

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