093_HB0215ham001

 










                                     LRB093 02612 MKM 12081 a

 1                     AMENDMENT TO HOUSE BILL 215

 2        AMENDMENT NO.     .  Amend House Bill 215 on page 1, line
 3    6, by replacing "Section 2310-377"  with  "Sections  2310-377
 4    and 2310-378"; and

 5    on  page  2,  immediately  below  line  9,  by  inserting the
 6    following:

 7        "(20 ILCS 2310/2310-378 new)
 8        Sec. 2310-378.  Wilson's disease.
 9        (a)  The Illinois General Assembly finds and declares the
10    following:
11             (1)  Wilson's disease is an  inherited  disorder  in
12        which  excessive amounts of copper accumulate in the body
13        and  can  cause  liver  disease   and   neurological   or
14        psychiatric disorders; and
15             (2)  successful treatment is available for sufferers
16        of  Wilson's  disease  but, without proper treatment, the
17        disease is generally fatal by the age of 30.
18        (b)  The Department shall: (i) conduct  a  public  health
19    information   campaign   for  physicians,  hospitals,  health
20    facilities, public health departments, and the general public
21    on  Wilson's  disease,  methods  of   care,   and   treatment
22    modalities  available;  (ii)  identify  and  catalog Wilson's
 
                            -2-      LRB093 02612 MKM 12081 a
 1    disease resources in this State for distribution and referral
 2    purposes; and  (iii)  coordinate  services  with  established
 3    programs, including State, federal, and voluntary groups.".