103RD GENERAL ASSEMBLY
State of Illinois
2023 and 2024
SB3288

 

Introduced 2/7/2024, by Sen. Robert Peters

 

SYNOPSIS AS INTRODUCED:
 
740 ILCS 110/2  from Ch. 91 1/2, par. 802
740 ILCS 110/5  from Ch. 91 1/2, par. 805
740 ILCS 110/11  from Ch. 91 1/2, par. 811

    Amends the Mental Health and Developmental Disabilities Confidentiality Act. Defines "research" to have the meaning that is ascribed to it in HIPAA and the Code of Federal Regulations. Changes the consent form to delete the requirement that the signature of the person giving consent or revocation of a consent does not have to be witnessed by a person who can attest to the identity of the person signing. Provides that records and communications may be disclosed for research in accordance with the requirements set forth under HIPAA and the Code of Federal Regulations.


LRB103 37694 JRC 67821 b

 

 

A BILL FOR

 

SB3288LRB103 37694 JRC 67821 b

1    AN ACT concerning civil law.
 
2    Be it enacted by the People of the State of Illinois,
3represented in the General Assembly:
 
4    Section 5. The Mental Health and Developmental
5Disabilities Confidentiality Act is amended by changing
6Sections 2, 5, and 11 as follows:
 
7    (740 ILCS 110/2)  (from Ch. 91 1/2, par. 802)
8    Sec. 2. The terms used in this Act, unless the context
9requires otherwise, have the meanings ascribed to them in this
10Section.
11    "Agent" means a person who has been legally appointed as
12an individual's agent under a power of attorney for health
13care or for property.
14    "Business associate" has the meaning ascribed to it under
15HIPAA, as specified in 45 CFR 160.103.
16    "Confidential communication" or "communication" means any
17communication made by a recipient or other person to a
18therapist or to or in the presence of other persons during or
19in connection with providing mental health or developmental
20disability services to a recipient. Communication includes
21information which indicates that a person is a recipient.
22"Communication" does not include information that has been
23de-identified in accordance with HIPAA, as specified in 45 CFR

 

 

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1164.514.
2    "Covered entity" has the meaning ascribed to it under
3HIPAA, as specified in 45 CFR 160.103.
4    "Guardian" means a legally appointed guardian or
5conservator of the person.
6    "Health information exchange" or "HIE" means a health
7information exchange or health information organization that
8oversees and governs the electronic exchange of health
9information.
10    "HIE purposes" means those uses and disclosures (as those
11terms are defined under HIPAA, as specified in 45 CFR 160.103)
12for activities of an HIE which are permitted under federal
13law.
14    "HIPAA" means the Health Insurance Portability and
15Accountability Act of 1996, Public Law 104-191, and any
16subsequent amendments thereto and any regulations promulgated
17thereunder, including the Security Rule, as specified in 45
18CFR 164.302-18, and the Privacy Rule, as specified in 45 CFR
19164.500-34.
20    "Integrated health system" means an organization with a
21system of care which incorporates physical and behavioral
22healthcare and includes care delivered in an inpatient and
23outpatient setting.
24    "Interdisciplinary team" means a group of persons
25representing different clinical disciplines, such as medicine,
26nursing, social work, and psychology, providing and

 

 

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1coordinating the care and treatment for a recipient of mental
2health or developmental disability services. The group may be
3composed of individuals employed by one provider or multiple
4providers.
5    "Mental health or developmental disabilities services" or
6"services" includes but is not limited to examination,
7diagnosis, evaluation, treatment, training, pharmaceuticals,
8aftercare, habilitation or rehabilitation.
9    "Personal notes" means:
10        (i) information disclosed to the therapist in
11    confidence by other persons on condition that such
12    information would never be disclosed to the recipient or
13    other persons;
14        (ii) information disclosed to the therapist by the
15    recipient which would be injurious to the recipient's
16    relationships to other persons, and
17        (iii) the therapist's speculations, impressions,
18    hunches, and reminders.
19    "Parent" means a parent or, in the absence of a parent or
20guardian, a person in loco parentis.
21    "Recipient" means a person who is receiving or has
22received mental health or developmental disabilities services.
23    "Record" means any record kept by a therapist or by an
24agency in the course of providing mental health or
25developmental disabilities service to a recipient concerning
26the recipient and the services provided. "Records" includes

 

 

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1all records maintained by a court that have been created in
2connection with, in preparation for, or as a result of the
3filing of any petition or certificate under Chapter II,
4Chapter III, or Chapter IV of the Mental Health and
5Developmental Disabilities Code and includes the petitions,
6certificates, dispositional reports, treatment plans, and
7reports of diagnostic evaluations and of hearings under
8Article VIII of Chapter III or under Article V of Chapter IV of
9that Code. Record does not include the therapist's personal
10notes, if such notes are kept in the therapist's sole
11possession for his own personal use and are not disclosed to
12any other person, except the therapist's supervisor,
13consulting therapist or attorney. If at any time such notes
14are disclosed, they shall be considered part of the
15recipient's record for purposes of this Act. "Record" does not
16include information that has been de-identified in accordance
17with HIPAA, as specified in 45 CFR 164.514. "Record" does not
18include a reference to the receipt of mental health or
19developmental disabilities services noted during a patient
20history and physical or other summary of care.
21    "Record custodian" means a person responsible for
22maintaining a recipient's record.
23    "Research" has the meaning ascribed to it under HIPAA as
24specified in 45 CFR 164.501.
25    "Therapist" means a psychiatrist, physician, psychologist,
26social worker, or nurse providing mental health or

 

 

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1developmental disabilities services or any other person not
2prohibited by law from providing such services or from holding
3himself out as a therapist if the recipient reasonably
4believes that such person is permitted to do so. Therapist
5includes any successor of the therapist.
6    "Therapeutic relationship" means the receipt by a
7recipient of mental health or developmental disabilities
8services from a therapist. "Therapeutic relationship" does not
9include independent evaluations for a purpose other than the
10provision of mental health or developmental disabilities
11services.
12(Source: P.A. 103-508, eff. 8-4-23.)
 
13    (740 ILCS 110/5)  (from Ch. 91 1/2, par. 805)
14    Sec. 5. Disclosure; consent.
15    (a) Except as provided in Sections 6 through 12.2 of this
16Act, records and communications may be disclosed to someone
17other than those persons listed in Section 4 of this Act only
18with the written consent of those persons who are entitled to
19inspect and copy a recipient's record pursuant to Section 4 of
20this Act.
21    (b) Every consent form shall be in writing and shall
22specify the following:
23        (1) the person or agency to whom disclosure is to be
24    made;
25        (2) the purpose for which disclosure is to be made;

 

 

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1        (3) the nature of the information to be disclosed;
2        (4) the right to inspect and copy the information to
3    be disclosed;
4    (5) the consequences of a refusal to consent, if any; and
5        (6) the calendar date on which the consent expires,
6    provided that if no calendar date is stated, information
7    may be released only on the day the consent form is
8    received by the therapist; and
9        (7) the right to revoke the consent at any time.
10    The consent form shall be signed by the person entitled to
11give consent and the signature shall be witnessed by a person
12who can attest to the identity of the person so entitled. A
13copy of the consent and a notation as to any action taken
14thereon shall be entered in the recipient's record. Any
15revocation of consent shall be in writing, signed by the
16person who gave the consent and the signature shall be
17witnessed by a person who can attest to the identity of the
18person so entitled. No written revocation of consent shall be
19effective to prevent disclosure of records and communications
20until it is received by the person otherwise authorized to
21disclose records and communications.
22    (c) Only information relevant to the purpose for which
23disclosure is sought may be disclosed. Blanket consent to the
24disclosure of unspecified information shall not be valid.
25Advance consent may be valid only if the nature of the
26information to be disclosed is specified in detail and the

 

 

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1duration of the consent is indicated. Consent may be revoked
2in writing at any time; any such revocation shall have no
3effect on disclosures made prior thereto.
4    (d) No person or agency to whom any information is
5disclosed under this Section may redisclose such information
6unless the person who consented to the disclosure specifically
7consents to such redisclosure.
8    (e) Except as otherwise provided in this Act, records and
9communications shall remain confidential after the death of a
10recipient and shall not be disclosed unless the recipient's
11representative, as defined in the Probate Act of 1975 and the
12therapist consent to such disclosure or unless disclosure is
13authorized by court order after in camera examination and upon
14good cause shown.
15    (f) Paragraphs (a) through (e) of this Section shall not
16apply to and shall not be construed to limit insurance
17companies writing Life, Accident or Health insurance as
18defined in Section 4 of the Illinois Insurance Code in
19obtaining general consents for the release to them or their
20designated representatives of any and all confidential
21communications and records kept by agencies, hospitals,
22therapists or record custodians, and utilizing such
23information in connection with the underwriting of
24applications for coverage for such policies or contracts, or
25in connection with evaluating claims or liability under such
26policies or contracts, or coordinating benefits pursuant to

 

 

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1policy or contract provisions.
2(Source: P.A. 90-655, eff. 7-30-98)
 
3    (740 ILCS 110/11)  (from Ch. 91 1/2, par. 811)
4    Sec. 11. Disclosure of records and communications. Records
5and communications may be disclosed:
6        (i) in accordance with the provisions of the Abused
7    and Neglected Child Reporting Act, subsection (u) of
8    Section 5 of the Children and Family Services Act, or
9    Section 7.4 of the Child Care Act of 1969;
10        (ii) when, and to the extent, a therapist, in his or
11    her sole discretion, determines that disclosure is
12    necessary to initiate or continue civil commitment or
13    involuntary treatment proceedings under the laws of this
14    State or to otherwise protect the recipient or other
15    person against a clear, imminent risk of serious physical
16    or mental injury or disease or death being inflicted upon
17    the recipient or by the recipient on himself or another;
18        (iii) when, and to the extent disclosure is, in the
19    sole discretion of the therapist, necessary to the
20    provision of emergency medical care to a recipient who is
21    unable to assert or waive his or her rights hereunder;
22        (iv) when disclosure is necessary to collect sums or
23    receive third party payment representing charges for
24    mental health or developmental disabilities services
25    provided by a therapist or agency to a recipient under

 

 

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1    Chapter V of the Mental Health and Developmental
2    Disabilities Code or to transfer debts under the
3    Uncollected State Claims Act; however, disclosure shall be
4    limited to information needed to pursue collection, and
5    the information so disclosed shall not be used for any
6    other purposes nor shall it be redisclosed except in
7    connection with collection activities;
8        (v) when requested by a family member, the Department
9    of Human Services may assist in the location of the
10    interment site of a deceased recipient who is interred in
11    a cemetery established under Section 26 of the Mental
12    Health and Developmental Disabilities Administrative Act;
13        (vi) in judicial proceedings under Article VIII of
14    Chapter III and Article V of Chapter IV of the Mental
15    Health and Developmental Disabilities Code and proceedings
16    and investigations preliminary thereto, to the State's
17    Attorney for the county or residence of a person who is the
18    subject of such proceedings, or in which the person is
19    found, or in which the facility is located, to the
20    attorney representing the petitioner in the judicial
21    proceedings, to the attorney representing the recipient in
22    the judicial proceedings, to any person or agency
23    providing mental health services that are the subject of
24    the proceedings and to that person's or agency's attorney,
25    to any court personnel, including but not limited to
26    judges and circuit court clerks, and to a guardian ad

 

 

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1    litem if one has been appointed by the court. Information
2    disclosed under this subsection shall not be utilized for
3    any other purpose nor be redisclosed except in connection
4    with the proceedings or investigations. Copies of any
5    records provided to counsel for a petitioner shall be
6    deleted or destroyed at the end of the proceedings and
7    counsel for petitioner shall certify to the court in
8    writing that he or she has done so. At the request of a
9    recipient or his or her counsel, the court shall issue a
10    protective order insuring the confidentiality of any
11    records or communications provided to counsel for a
12    petitioner;
13        (vii) when, and to the extent disclosure is necessary
14    to comply with the requirements of the Census Bureau in
15    taking the federal Decennial Census;
16        (viii) when, and to the extent, in the therapist's
17    sole discretion, disclosure is necessary to warn or
18    protect a specific individual against whom a recipient has
19    made a specific threat of violence where there exists a
20    therapist-recipient relationship or a special
21    recipient-individual relationship;
22        (ix) in accordance with the Sex Offender Registration
23    Act;
24        (x) in accordance with the Rights of Crime Victims and
25    Witnesses Act;
26        (xi) in accordance with Section 6 of the Abused and

 

 

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1    Neglected Long Term Care Facility Residents Reporting Act;
2        (xii) in accordance with Section 55 of the Abuse of
3    Adults with Disabilities Intervention Act;
4        (xiii) to an HIE as specifically allowed under this
5    Act for HIE purposes and in accordance with any applicable
6    requirements of the HIE; and
7        (xiv) to a law enforcement agency in connection with
8    the investigation or recovery of a person who has left a
9    mental health or developmental disability facility as
10    defined in Section 1-107 or 1-114 of the Mental Health and
11    Developmental Disabilities Code or the custody of the
12    Department of Human Services without being duly discharged
13    or being free to do so; however, disclosure shall be
14    limited to identifying information as defined in Section
15    12.2 of this Act; and .
16        (xv) for research in accordance with the requirements
17    set forth under HIPAA. Without limiting the generality of
18    the foregoing, any authorization obtained in connection
19    with research that meets the requirements of 45 CFR
20    164.508(c) shall be exempt from the consent requirements
21    of Section 5 of this Act.
22    Any person, institution, or agency, under this Act,
23participating in good faith in the making of a report under the
24Abused and Neglected Child Reporting Act or in the disclosure
25of records and communications under this Section, shall have
26immunity from any liability, civil, criminal or otherwise,

 

 

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1that might result by reason of such action. For the purpose of
2any proceeding, civil or criminal, arising out of a report or
3disclosure under this Section, the good faith of any person,
4institution, or agency so reporting or disclosing shall be
5presumed.
6(Source: P.A. 98-378, eff. 8-16-13; 99-216, eff. 7-31-15.)