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1
HOUSE RESOLUTION

 
2    WHEREAS, Turner Syndrome is a rare and non-inheritable
3chromosomal condition that occurs when the secondary X
4chromosome is partially or completely missing for those born
5female; and
 
6    WHEREAS, More than 98% of fetuses with Turner Syndrome
7will die before birth, resulting in about 10% percent of all
8first trimester miscarriages; and
 
9    WHEREAS, Turner Syndrome affects approximately one in
102,000 female live births worldwide; and
 
11    WHEREAS, Three in 10 individuals diagnosed with Turner
12Syndrome have Mosaic Turner Syndrome, for which the number of
13X chromosomes can vary; and
 
14    WHEREAS, There are over 85,000 people living with Turner
15Syndrome in the United States, and more than 30% of
16individuals born with Turner Syndrome are not diagnosed until
17they are 15 years old, with only 3.5% receiving adequate care;
18and
 
19    WHEREAS, Those living with Turner Syndrome often face
20lifelong cognitive, emotional, physical, and psychological

 

 

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1challenges that can be better mitigated with early diagnosis
2and treatment; therefore, be it
 
3    RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE
4HUNDRED THIRD GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that
5we declare February of 2024 as Turner Syndrome Awareness Month
6in the State of Illinois; and be it further
 
7    RESOLVED, That we urge increased funding for Turner
8Syndrome research and support; and be it further
 
9    RESOLVED, That we urge health care professionals, public
10schools, educators, and the public to become more familiar
11with Turner Syndrome in order to promote early diagnosis,
12support those living with Turner Syndrome, and raise support
13for organizations dedicated to improving the lives of people
14with Turner Syndrome.