SB3092 101ST GENERAL ASSEMBLY

LRB101 17666 CPF 67093 b

101ST GENERAL ASSEMBLY
State of Illinois
2019 and 2020
SB3092

Introduced 2/6/2020, by Sen. Chapin Rose

SYNOPSIS AS INTRODUCED:

410 ILCS 513/31.11 new

Amends the Genetic Information Privacy Act. Provides that it is unlawful for any person or business to disclose an individual's genetic information to third parties specifically for marketing, advertising, or sales purposes unless the individual, or his or her legal guardian or legally authorized representative, consents in writing to the disclosure. Provides that any request for consent to disclose an individual's genetic information to third parties for marketing, advertising, or sales purposes must be provided in a written notice separate from any other communication that clearly and conspicuously states how the information will be disclosed, including to whom the information will be disclosed and how the information will be used by the recipient, seeks the individual's, or his or her legal guardian's or legally authorized representative's, consent to disclosure, and informs the individual, or his or her legal guardian or legally authorized representative, of how to cancel consent to disclosure once given.

A BILL FOR

AN ACT concerning health.

Be it enacted by the People of the State of Illinois, represented in the General Assembly:

Section 5. The Genetic Information Privacy Act is amended by adding Section 31.11 as follows:

(410 ILCS 513/31.11 new)

Sec. 31.11. Uses and disclosures for marketing, advertising, or sales. It is unlawful for any person or business to disclose an individual's genetic information to third parties specifically for marketing, advertising, or sales purposes unless the individual, or his or her legal guardian or legally authorized representative, consents in writing to the disclosure. Any request for consent to disclose an individual's genetic information to third parties for marketing, advertising, or sales purposes must be provided in a written notice separate from any other communication that clearly and conspicuously states how the information will be disclosed, including to whom the information will be disclosed and how the information will be used by the recipient, seeks the individual's, or his or her legal guardian's or legally authorized representative's, consent to disclosure, and informs the individual, or his or her legal guardian or legally authorized representative, of how to cancel consent to disclosure once given.