101ST GENERAL ASSEMBLY
State of Illinois
2019 and 2020
HB5241

 

Introduced , by Rep. Stephanie A. Kifowit

 

SYNOPSIS AS INTRODUCED:
 
405 ILCS 30/4.3

    Amends the Community Services Act. Removes language requiring the Department of Human Services to establish a Family Support Services Voucher Pilot Program and instead requires the Department to coordinate and fund the Voucher Respite Program. Provides that the Voucher Respite Program shall be a subset of specified programs with the exception that administration of the Program shall not be limited to agencies that provide respite services. Provides that the purpose of the Program is to increase the number of families who are able to access respite services; provide families with greater flexibility over services; and prevent or delay the need for more intensive long-term care and support. Makes other conforming changes. Effective July 1, 2020.


LRB101 16750 KTG 66140 b

FISCAL NOTE ACT MAY APPLY

 

 

A BILL FOR

 

HB5241LRB101 16750 KTG 66140 b

1    AN ACT concerning mental health.
 
2    Be it enacted by the People of the State of Illinois,
3represented in the General Assembly:
 
4    Section 5. The Community Services Act is amended by
5changing Section 4.3 as follows:
 
6    (405 ILCS 30/4.3)
7    Sec. 4.3. Voucher Respite Program Family Support Services
8Voucher Pilot Program.
9    (a) In this Section:
10    "Family member" means a family member as defined by rules
11adopted by the Department of Human Services.
12    "Voucher respite services" "Family support services" means
13the services and activities described in subsection (d).
14    (b) The Department of Human Services shall coordinate and
15fund the establish a Family Support Services Voucher Respite
16Pilot Program which shall be a subset conversion of the
17programs program defined in Section 4.1 with the exception that
18administration of the Voucher Respite Program shall not be
19limited to agencies that provide respite services. The Voucher
20Respite Program may be administered by entities meeting the
21standards outlined by the Department. The Department shall
22establish Voucher Respite contracts with community entities
23throughout the State in order to meet the service needs of

 

 

HB5241- 2 -LRB101 16750 KTG 66140 b

1families. The Department may establish no more than 5 pilot
2programs.
3    (c) The purpose of the Voucher Respite Program the pilot
4program is to do the following:
5        (1) Increase the number of families who are able to
6    access respite family support services.
7        (2) Provide families with greater flexibility control
8    over family support services.
9        (3) Ensure that the diverse family support services
10    needs of families can be accommodated.
11        (4) Prevent or delay the need for more intensive
12    long-term care and support. Encourage a family's
13    contribution toward payment for the family support
14    services they receive.
15        (5) (Blank). Serve as a pilot program to evaluate the
16    merits of a family support services voucher program in
17    comparison to the traditional respite program.
18    (d) The Department shall contract with community entities
19agencies to issue vouchers to participating families, or to
20employ a voucher-like method that similarly makes services
21available based on the choice of families. A family may use the
22vouchers to purchase the following services and activities or
23to otherwise provide for those services and activities:
24        (1) Services of an in-home caregiver to supervise the
25    family member with a developmental disability in the home
26    or in the community or both when other family members are

 

 

HB5241- 3 -LRB101 16750 KTG 66140 b

1    not present.
2        (2) Services of a person to accompany the family member
3    with a developmental disability on outings, community
4    activities, and similar activities.
5        (3) Registration of the family member with a
6    developmental disability in park district programs,
7    extracurricular school activities, community college
8    classes, and other similar types of community-based
9    programs.
10        (4) Services of home health care personnel if medical
11    training or expertise is required to meet the needs of the
12    family member with a developmental disability.
13    (e) Families may employ the following types of individuals
14to provide family support services:
15        (1) Related family members who do not reside in the
16    same home as the family member with a developmental
17    disability.
18        (2) Friends or neighbors whom the family designates as
19    capable of meeting the needs of the family member with a
20    developmental disability.
21        (3) Individuals recruited from the community (for
22    example, church members or college students).
23        (4) Individuals who work with the family member with a
24    developmental disability in a different capacity (for
25    example, classroom aide or day program staff).
26        (5) Persons whose services are contracted for through a

 

 

HB5241- 4 -LRB101 16750 KTG 66140 b

1    home health agency licensed under the Home Health, Home
2    Services, and Home Nursing Agency Licensing Act.
3    (f) Voucher respite services Family support services
4moneys under the pilot program may not be used to purchase or
5provide for any of the following services or activities:
6        (1) Out-of-home medical services.
7        (2) Medical, therapeutic, or developmental
8    evaluations.
9        (3) Any product or item (for example, sports equipment,
10    therapeutic devices, or clothing).
11        (4) Respite Family support services provided by a
12    family member whose primary residence is the same as that
13    of the family member with a developmental disability.
14        (5) Services of a person to accompany the family on an
15    overnight trip.
16        (6) Any service or activity that should be provided by
17    the school in which the family member with a developmental
18    disability is enrolled or that occurs as part of that
19    school's typical school routine.
20        (7) Child care services while the primary caretaker
21    works.
22    (g) (Blank) The Department of Human Services shall submit a
23report to the General Assembly by March 1, 2000 evaluating the
24merits of the pilot program.
25(Source: P.A. 94-379, eff. 1-1-06.)
 
26    Section 99. Effective date. This Act takes effect July 1,

 

 

HB5241- 5 -LRB101 16750 KTG 66140 b

12020.