RARE DISEASE COMMISSION House SponsorsRep. Sonya M. Harper-Mary E. Flowers-Litesa E. Wallace-John D. Anthony, Monique D. Davis, Michael J. Zalewski, Robert Martwick, Kathleen Willis, Stephanie A. Kifowit, Al Riley, Carol Ammons, Cynthia Soto, Kenneth Dunkin, Camille Y. Lilly and Marcus C. Evans, Jr. Senate Sponsors(Sen. John G. Mulroe-Linda Holmes-Ira I. Silverstein, Andy Manar-Jacqueline Y. Collins, Terry Link and Jason A. Barickman-Donne E. Trotter) 8/12/2016HousePublic Act . . . . . . . . . 99-0773 New Act Creates the Rare Disease Commission Act. Provides for the creation of the Rare Disease Commission. Defines terms. Provides that initial appointments shall be made by February 1, 2017. Provides required criteria and considerations for appointees and nominations to the Commission. Includes provisions regarding the terms, vacancies, and compensation for the Commission's membership. Requires that the Commission meet at least quarterly and submit an annual report due no later than December 31 of every year to the General Assembly. Provides that the Department of Public Health shall provide administrative and other support to the Commission. Effective January 1, 2017.House Committee Amendment No. 1 Deletes a provision concerning a $50 per day payment for lost wages to members of the Rare Disease Commission.Senate Committee Amendment No. 1 Removes provisions concerning compensation for members of the Rare Disease Commission. Makes other changes.Senate Floor Amendment No. 2 Removes provisions concerning compensation for members of the Rare Disease Commission. Removes language providing that members shall be appointed to staggered terms. Provides that the Rare Disease Commission shall coordinate with the Genetic and Metabolic Diseases Advisory Committee for the portion of the Commission's annual report concerning the screening of newborn infants. Provides that the Act shall be repealed on January 1, 2020. Makes a conforming change. 1/28/2016HouseFiled with the Clerk by Rep. Sonya M. Harper 1/28/2016HouseAdded Chief Co-Sponsor Rep. Mary E. Flowers 1/28/2016HouseChief Co-Sponsor Changed to Rep. Litesa E. Wallace 1/28/2016HouseChief Co-Sponsor Changed to Rep. Mary E. Flowers 1/28/2016HouseAdded Chief Co-Sponsor Rep. Litesa E. Wallace 1/28/2016HouseFirst Reading 1/28/2016HouseReferred to Rules Committee 2/16/2016HouseAdded Co-Sponsor Rep. Monique D. Davis 3/3/2016HouseAdded Co-Sponsor Rep. Michael J. Zalewski 3/3/2016HouseAdded Co-Sponsor Rep. Robert Martwick 3/3/2016HouseAdded Co-Sponsor Rep. Kathleen Willis 3/3/2016HouseAdded Chief Co-Sponsor Rep. John D. Anthony 3/3/2016HouseAdded Co-Sponsor Rep. Stephanie A. Kifowit 3/18/2016HouseAdded Co-Sponsor Rep. Al Riley 3/23/2016HouseAssigned to Human Services Committee 3/31/2016HouseHouse Committee Amendment No. 1 Filed with Clerk by Rep. Sonya M. Harper 3/31/2016HouseHouse Committee Amendment No. 1 Referred to Rules Committee 4/4/2016HouseHouse Committee Amendment No. 1 Rules Refers to Human Services Committee 4/5/2016HouseHouse Committee Amendment No. 1 Adopted in Human Services Committee; by Voice Vote 4/5/2016HouseDo Pass as Amended / Standard Debate Human Services Committee; 008-006-000 4/5/2016HousePlaced on Calendar 2nd Reading - Standard Debate 4/5/2016HouseAdded Co-Sponsor Rep. Carol Ammons 4/7/2016HouseSecond Reading - Standard Debate 4/7/2016HousePlaced on Calendar Order of 3rd Reading - Standard Debate 4/12/2016HouseThird Reading - Standard Debate - Passed 073-040-000 4/12/2016HouseAdded Co-Sponsor Rep. Cynthia Soto 4/12/2016HouseAdded Co-Sponsor Rep. Kenneth Dunkin 4/12/2016HouseAdded Co-Sponsor Rep. Camille Y. Lilly 4/13/2016SenateArrive in Senate 4/13/2016SenatePlaced on Calendar Order of First Reading 4/13/2016SenateChief Senate Sponsor Sen. John G. Mulroe 4/13/2016SenateAdded as Alternate Chief Co-Sponsor Sen. Linda Holmes 4/13/2016SenateAdded as Alternate Chief Co-Sponsor Sen. Ira I. Silverstein 4/13/2016SenateFirst Reading 4/13/2016SenateReferred to Assignments 4/20/2016SenateAdded as Alternate Co-Sponsor Sen. Andy Manar 4/21/2016SenateAdded as Alternate Chief Co-Sponsor Sen. Jacqueline Y. Collins 4/21/2016SenateAdded as Alternate Co-Sponsor Sen. Terry Link 4/27/2016SenateAssigned to Public Health 5/3/2016SenatePostponed - Public Health 5/4/2016SenateSenate Committee Amendment No. 1 Filed with Secretary by Sen. John G. Mulroe 5/4/2016SenateSenate Committee Amendment No. 1 Referred to Assignments 5/10/2016SenateSenate Committee Amendment No. 1 Assignments Refers to Public Health 5/10/2016SenateSenate Committee Amendment No. 1 Adopted 5/11/2016SenateAdded as Alternate Co-Sponsor Sen. Jason A. Barickman 5/11/2016SenateDo Pass as Amended Public Health; 008-000-000 5/11/2016SenatePlaced on Calendar Order of 2nd Reading May 12, 2016 5/12/2016SenateSenate Floor Amendment No. 2 Filed with Secretary by Sen. John G. Mulroe 5/12/2016SenateSenate Floor Amendment No. 2 Referred to Assignments 5/12/2016SenateAdded as Alternate Chief Co-Sponsor Sen. Donne E. Trotter 5/17/2016SenateSecond Reading 5/17/2016SenatePlaced on Calendar Order of 3rd Reading May 18, 2016 5/17/2016SenateSenate Floor Amendment No. 2 Assignments Refers to Public Health 5/18/2016SenateSenate Floor Amendment No. 2 Recommend Do Adopt Public Health; 005-000-000 5/26/2016SenateRecalled to Second Reading 5/26/2016SenateSenate Floor Amendment No. 2 Adopted; Mulroe 5/26/2016SenatePlaced on Calendar Order of 3rd Reading 5/26/2016SenateThird Reading - Passed; 054-000-000 5/26/2016HouseArrived in House 5/26/2016HousePlaced on Calendar Order of Concurrence Senate Amendment(s) 1, 2 5/29/2016HouseSenate Committee Amendment No. 1 Motion Filed Concur Rep. Sonya M. Harper 5/29/2016HouseSenate Floor Amendment No. 2 Motion Filed Concur Rep. Sonya M. Harper 5/29/2016HouseSenate Committee Amendment No. 1 Motion to Concur Referred to Rules Committee 5/29/2016HouseSenate Floor Amendment No. 2 Motion to Concur Referred to Rules Committee 5/29/2016HouseSenate Committee Amendment No. 1 Motion to Concur Rules Referred to Human Services Committee 5/29/2016HouseSenate Floor Amendment No. 2 Motion to Concur Rules Referred to Human Services Committee 5/29/2016HouseSenate Committee Amendment No. 1 Motion to Concur Recommends Be Adopted Human Services Committee; 008-004-000 5/29/2016HouseSenate Floor Amendment No. 2 Motion to Concur Recommends Be Adopted Human Services Committee; 008-005-000 5/30/2016HouseAdded Co-Sponsor Rep. Marcus C. Evans, Jr. 5/31/2016HouseSenate Committee Amendment No. 1 House Concurs 102-014-000 5/31/2016HouseSenate Floor Amendment No. 2 House Concurs 102-014-000 5/31/2016HouseHouse Concurs 5/31/2016HousePassed Both Houses 6/27/2016HouseSent to the Governor 8/12/2016HouseGovernor Approved 8/12/2016HouseEffective Date January 1, 2017 8/12/2016HousePublic Act . . . . . . . . . 99-0773