MEDICAID-PEDIATRIC PALLIATIVE Senate SponsorsSen. Dale A. Righter-Pamela J. Althoff House Sponsors(Rep. JoAnn D. Osmond-Mark H. Beaubien, Jr.-Sara Feigenholtz-Julie Hamos-Elizabeth Coulson, Patricia R. Bellock, Suzanne Bassi, Kathleen A. Ryg, Deborah Mell, Mary E. Flowers, Jim Watson and Al Riley) 10/29/2009SenateBill Dead - Amendatory Veto New Act210 ILCS 60/15Creates the Pediatric Palliative Care Act. Provides that the Department of Healthcare and Family Services shall develop a pediatric palliative care pilot program under which a qualifying child may receive community-based pediatric palliative care from a trained interdisciplinary team while continuing to pursue aggressive curative treatments for a potentially life-limiting medical condition under the benefits available under the Medicaid program. Provides that the Department shall apply for a federal waiver to conduct the program. Provides that a "qualifying child" for the pilot program is a child under the age of 18 years who is enrolled in the Medicaid program and suffers from a potentially life-limiting medical condition. Sets forth certain counties to be included in the pilot program. Requires a report to the General Assembly at the end of the 3-year pilot period. Amends the Hospice Program Licensing Act; requires the Hospice and Palliative Care Advisory Board to review pediatric palliative care issues. Effective immediately.House Committee Amendment No. 1 Requires the Department of Healthcare and Family Services to apply for a waiver "or State Plan amendment" to implement the pediatric palliative care pilot program. Provides that if the Department applies for a State Plan amendment, the amendment shall be filed within 12 months after the effective date of the Pediatric Palliative Care Act.Governor Amendatory Veto Message Recommends that the development of a pediatric palliative care pilot program be subject to appropriation, and that the taking of certain actions under the Pediatric Palliative Care Act be discretionary or subject to appropriation. Also recommends deleting language in the Hospice Program Licensing Act that (1) provides that the Hospice and Palliative Care Advisory Board shall advise the Department of Public Health on all aspects of the Department's responsibilities under that Act and (2) requires the Department to follow the advice of the Board when making rules under that Act. 2/19/2009SenateFiled with Secretary by Sen. Dale A. Righter 2/19/2009SenateFirst Reading 2/19/2009SenateReferred to Assignments 2/25/2009SenateAssigned to Human Services 3/5/2009SenateDo Pass Human Services; 008-000-000 3/5/2009SenatePlaced on Calendar Order of 2nd Reading March 6, 2009 3/30/2009SenateSecond Reading 3/30/2009SenatePlaced on Calendar Order of 3rd Reading March 31, 2009 3/31/2009SenateAdded as Chief Co-Sponsor Sen. Pamela J. Althoff 3/31/2009SenateThird Reading - Passed; 054-000-000 3/31/2009HouseArrived in House 3/31/2009HousePlaced on Calendar Order of First Reading 3/31/2009HouseChief House Sponsor Rep. JoAnn D. Osmond 3/31/2009HouseFirst Reading 3/31/2009HouseReferred to Rules Committee 4/8/2009HouseAdded Alternate Chief Co-Sponsor Rep. Mark H. Beaubien, Jr. 4/14/2009HouseAssigned to Human Services Committee 4/21/2009HouseAdded Alternate Chief Co-Sponsor Rep. Sara Feigenholtz 4/22/2009HouseAdded Alternate Chief Co-Sponsor Rep. Julie Hamos 4/28/2009HouseAdded Alternate Chief Co-Sponsor Rep. Elizabeth Coulson 5/6/2009HouseHouse Committee Amendment No. 1 Filed with Clerk by Human Services Committee 5/6/2009HouseHouse Committee Amendment No. 1 Adopted in Human Services Committee; by Voice Vote 5/6/2009HouseDo Pass as Amended / Short Debate Human Services Committee; 005-000-000 5/6/2009HousePlaced on Calendar 2nd Reading - Short Debate 5/6/2009HouseAdded Alternate Co-Sponsor Rep. Patricia R. Bellock 5/6/2009HouseAdded Alternate Co-Sponsor Rep. Suzanne Bassi 5/12/2009HouseSecond Reading - Short Debate 5/12/2009HousePlaced on Calendar Order of 3rd Reading - Short Debate 5/13/2009HouseAdded Alternate Co-Sponsor Rep. Kathleen A. Ryg 5/13/2009HouseAdded Alternate Co-Sponsor Rep. Deborah Mell 5/13/2009HouseAdded Alternate Co-Sponsor Rep. Mary E. Flowers 5/13/2009HouseAdded Alternate Co-Sponsor Rep. Jim Watson 5/14/2009HouseThird Reading - Short Debate - Passed 113-000-000 5/14/2009HouseAdded Alternate Co-Sponsor Rep. Al Riley 5/15/2009SenateSecretary's Desk - Concurrence House Amendment(s) 1 5/15/2009SenatePlaced on Calendar Order of Concurrence House Amendment(s) 1 - May 17, 2009 5/15/2009SenateHouse Committee Amendment No. 1 Motion to Concur Filed with Secretary Sen. Dale A. Righter 5/15/2009SenateHouse Committee Amendment No. 1 Motion to Concur Referred to Assignments 5/22/2009SenateHouse Committee Amendment No. 1 Motion to Concur Assignments Referred to Human Services 5/26/2009SenateHouse Committee Amendment No. 1 Motion To Concur Recommended Do Adopt Human Services; 008-000-000 5/27/2009SenateHouse Committee Amendment No. 1 Senate Concurs 059-000-000 5/27/2009SenatePassed Both Houses 6/25/2009SenateSent to the Governor 8/24/2009SenateGovernor Amendatory Veto 10/14/2009SenatePlaced on Calendar Amendatory Veto October 15, 2009 10/29/2009SenateBill Dead - Amendatory Veto