DPH-NEONATAL DIABETES REGISTRY House SponsorsRep. Tom Cross-Barbara Flynn Currie-Sara Feigenholtz-Timothy L. Schmitz-Elizabeth Coulson Senate Sponsors(Sen. Don Harmon-Linda Holmes-Jeffrey M. Schoenberg) 8/13/2009HousePublic Act . . . . . . . . . 96-0395 20 ILCS 2310/2310-640 new Amends the Department of Public Health Powers and Duties Law of the Civil Administrative Code of Illinois. Requires the Department of Public Health to develop and implement a neonatal diabetes mellitus registry pilot program. Requires the Department to create an electronic registry to track glycosylated hemoglobin levels of persons with monogenic neonatal diabetes. Requires physicians and other healthcare providers treating a patient with diabetes mellitus with onset before 12 months of age to report the occurrence of all such cases to the Department within 30 days after diagnosis. Requires clinical laboratories performing glycosylated hemoglobin tests for patients with diabetes mellitus with onset before 12 months of age to report the results of each test that the laboratory performs to the Department within 30 days after performing the test. Provides that the Department shall create for dissemination to physicians, healthcare providers, and certain clinical laboratories a consent form. Provides that the physician, healthcare provider, or laboratory shall obtain the informed consent of the patient to the disclosure of the patient's information. Sets forth consent requirements and confidentiality provisions. Provides that the Department shall allow access of the registry to neonatal diabetes mellitus research institutions. Provides that these provisions are repealed on December 31, 2012. Effective immediately.House Committee Amendment No. 1 Changes a reference of "physicians" to "physicians licensed to practice medicine in all its branches". Provides that a healthcare provider shall obtain the written informed consent (instead of informed consent) of a patient to the disclosure of the patient's information. Provides that no duty to report under the Act exists if the patient's legal representative refuses written informed consent to report. 2/19/2009HouseFiled with the Clerk by Rep. Tom Cross 2/19/2009HouseChief Co-Sponsor Rep. Barbara Flynn Currie 2/20/2009HouseFirst Reading 2/20/2009HouseReferred to Rules Committee 2/25/2009HouseAdded Chief Co-Sponsor Rep. Sara Feigenholtz 2/25/2009HouseAssigned to Human Services Committee 3/4/2009HouseAdded Chief Co-Sponsor Rep. Timothy L. Schmitz 3/4/2009HouseHouse Committee Amendment No. 1 Filed with Clerk by Human Services Committee 3/4/2009HouseHouse Committee Amendment No. 1 Adopted in Human Services Committee; by Voice Vote 3/4/2009HouseDo Pass as Amended / Short Debate Human Services Committee; 007-000-000 3/4/2009HousePlaced on Calendar 2nd Reading - Short Debate 3/17/2009HouseSecond Reading - Short Debate 3/17/2009HousePlaced on Calendar Order of 3rd Reading - Short Debate 3/18/2009HouseAdded Chief Co-Sponsor Rep. Elizabeth Coulson 3/18/2009HouseThird Reading - Short Debate - Passed 116-000-000 3/19/2009SenateArrive in Senate 3/19/2009SenatePlaced on Calendar Order of First Reading 3/19/2009SenateChief Senate Sponsor Sen. Don Harmon 3/19/2009SenateFirst Reading 3/19/2009SenateReferred to Assignments 4/22/2009SenateAssigned to Public Health 4/29/2009SenateDo Pass Public Health; 007-000-000 4/29/2009SenatePlaced on Calendar Order of 2nd Reading April 30, 2009 5/1/2009SenateAdded as Alternate Chief Co-Sponsor Sen. Linda Holmes 5/12/2009SenateSecond Reading 5/12/2009SenatePlaced on Calendar Order of 3rd Reading ** May 18, 2009 5/15/2009SenateAdded as Alternate Chief Co-Sponsor Sen. Jeffrey M. Schoenberg 5/19/2009SenateThird Reading - Passed; 058-000-000 5/19/2009HousePassed Both Houses 6/17/2009HouseSent to the Governor 8/13/2009HouseGovernor Approved 8/13/2009HouseEffective Date August 13, 2009 8/13/2009HousePublic Act . . . . . . . . . 96-0395