PB HLTH-CANCER REGISTRY PRIVA Senate SponsorsSen. Kimberly A. Lightford House Sponsors(Rep. Al Riley-Mike Fortner) 1/13/2009SenateSession Sine Die 5 ILCS 140/7from Ch. 116, par. 207410 ILCS 525/3from Ch. 111 1/2, par. 6703410 ILCS 525/4from Ch. 111 1/2, par. 6704410 ILCS 525/9from Ch. 111 1/2, par. 6709410 ILCS 525/9.1 new410 ILCS 525/12from Ch. 111 1/2, par. 6712Amends the Illinois Health and Hazardous Substances Registry Act and the Freedom of Information Act. Provides that certain data elements from the Illinois Health and Hazardous Substances Registry, alone or in combination, are confidential, shall not be open to public inspection or dissemination, and are exempt from disclosure under the Freedom of Information Act. Makes a corresponding change in the Freedom of Information Act. Adds definitions of "news medium" and "researcher". Provides that upon review and approval of an appropriate Institutional Review Board (IRB) or its equivalent on the protection of human subjects in research, the Department of Public Health shall release data to researchers for purposes of medical and scientific research consistent with the fundamental purposes of the Registry. Provides that upon review and approval of an appropriate IRB or its equivalent on the protection of human subjects in research, the Department shall release data not otherwise available for release under the Freedom of Information Act to news media for purposes of public interest research consistent with the fundamental purpose of the Registry. In a Section concerning the annual report to be published by the Department, provides that identification or contact of individuals from public reports or data released under the Freedom of Information Act is prohibited. Provides that the Department shall make available on its web site non-confidential public use databases for easy and direct access and download by the public. Effective July 1, 2007.House Amendment No. 1 Provides that there is no rulemaking authority under the amendatory Act, but that the Governor may suggest rules by filing them with the General Assembly and requesting that the General Assembly authorize such rulemaking by law, enact the suggested rules into law, or take other appropriate action in the General Assembly's discretion. 2/15/2008SenateFiled with Secretary by Sen. Debbie DeFrancesco Halvorson 2/15/2008SenateFirst Reading 2/15/2008SenateReferred to Rules 2/28/2008SenateAssigned to Public Health 3/5/2008SenateChief Sponsor Changed to Sen. Kimberly A. Lightford 3/6/2008SenateDo Pass Public Health; 008-000-000 3/6/2008SenatePlaced on Calendar Order of 2nd Reading March 11, 2008 4/3/2008SenateSecond Reading 4/3/2008SenatePlaced on Calendar Order of 3rd Reading April 8, 2008 4/8/2008SenateThird Reading - Passed; 051-000-000 4/8/2008HouseArrived in House 4/8/2008HousePlaced on Calendar Order of First Reading 4/17/2008HouseChief House Sponsor Rep. Al Riley 4/17/2008HouseFirst Reading 4/17/2008HouseReferred to Rules Committee 5/1/2008HouseAssigned to Human Services Committee 5/9/2008HouseCommittee Deadline Extended-Rule 9(b) May 23, 2008 5/14/2008HouseHouse Amendment No. 1 Filed with Clerk by Human Services Committee 5/14/2008HouseHouse Amendment No. 1 Adopted in Human Services Committee; by Voice Vote 5/14/2008HouseDo Pass as Amended / Short Debate Human Services Committee; 009-000-000 5/14/2008HousePlaced on Calendar 2nd Reading - Short Debate 5/23/2008HouseFinal Action Deadline Extended-9(b) May 31, 2008 5/28/2008HouseSecond Reading - Short Debate 5/28/2008HousePlaced on Calendar Order of 3rd Reading - Short Debate 5/28/2008HouseAdded Alternate Chief Co-Sponsor Rep. Mike Fortner 5/30/2008HouseThird Reading - Short Debate - Passed 114-000-000 5/30/2008SenateSecretary's Desk - Concurrence House Amendment(s) 01 5/30/2008SenatePlaced on Calendar Order of Concurrence House Amendment(s) 01-May 31, 2008 5/30/2008SenateHouse Amendment No. 1 Motion to Non-Concur Filed with Secretary Sen. Kimberly A. Lightford 7/1/2008SenatePursuant to Senate Rule 3-9(b) / Referred to Rules 1/13/2009SenateSession Sine Die