PB HLTH-CANCER REGISTRY PRIVA House SponsorsRep. Sara Feigenholtz Senate Sponsors(Sen. Kimberly A. Lightford) 8/29/2008HousePublic Act . . . . . . . . . 95-0941 5 ILCS 140/7from Ch. 116, par. 207410 ILCS 525/4from Ch. 111 1/2, par. 6704410 ILCS 525/9from Ch. 111 1/2, par. 6709410 ILCS 525/12from Ch. 111 1/2, par. 6712 Amends the Illinois Health and Hazardous Substances Registry Act and the Freedom of Information Act. Provides that certain data elements from the Illinois Health and Hazardous Substances Registry, alone or in combination, are confidential, shall not be open to public inspection or dissemination, and are exempt from disclosure under the Freedom of Information Act. Makes a corresponding change in the Freedom of Information Act. Provides that upon approval of an appropriate Institutional Review Board (IRB) or its equivalent on protection of human subjects in research, the Department of Public Health shall release data to researchers for purposes of medical and scientific research. In a Section concerning the annual report to be published by the Department, provides that identification or contact of individuals from public reports or data released under the Freedom of Information Act is prohibited. Provides that the Department shall make available on its web site non-confidential public use databases for easy and direct access and download by the public. Effective July 1, 2007.House Amendment No. 1 Adds reference to:410 ILCS 525/3from Ch. 111 1/2, par. 6703410 ILCS 525/9.1 newFurther amends the Illinois Health and Hazardous Substances Registry Act. Makes a technical correction. Adds definitions of "news medium" and "researcher". Provides that upon review and approval (instead of only upon approval) of an appropriate Institutional Review Board or its equivalent on the protection of human subjects in research, the Department of Public Health shall release data to researchers for purposes of medical and scientific research consistent with the fundamental purposes of the Registry (instead only for purposes of medical and scientific research). Adds a provision providing that upon review and approval of an appropriate Institutional Review Board or its equivalent on protection of human subjects in research, the Department shall release data not otherwise available for release under the Freedom of Information Act to news media for purposes of public interest research consistent with the fundamental purposes of the Registry.Senate Committee Amendment No. 1 Makes a technical change to update the statute base. Changes the effective date to July 1, 2008 (instead of July 1, 2007). 2/27/2007HouseFiled with the Clerk by Rep. Sara Feigenholtz 2/27/2007HouseFirst Reading 2/27/2007HouseReferred to Rules Committee 3/1/2007HouseAssigned to State Government Administration Committee 3/7/2007HouseDo Pass / Short Debate State Government Administration Committee; 008-000-000 3/8/2007HousePlaced on Calendar 2nd Reading - Short Debate 3/13/2007HouseSecond Reading - Short Debate 3/13/2007HousePlaced on Calendar Order of 3rd Reading - Short Debate 4/25/2007HouseHouse Amendment No. 1 Filed with Clerk by Rep. Sara Feigenholtz 4/25/2007HouseHouse Amendment No. 1 Referred to Rules Committee 4/26/2007HouseRecalled to Second Reading - Short Debate 4/26/2007HouseHeld on Calendar Order of Second Reading - Short Debate 4/27/2007HouseThird Reading/Final Action Deadline Extended-9(b) May 3, 2007 4/30/2007HouseHouse Amendment No. 1 Recommends Be Adopted Rules Committee; 003-000-000 5/2/2007HouseHouse Amendment No. 1 Adopted by Voice Vote 5/2/2007HousePlaced on Calendar Order of 3rd Reading - Short Debate 5/3/2007HouseThird Reading - Short Debate - Passed 115-000-000 5/3/2007SenateArrive in Senate 5/3/2007SenatePlaced on Calendar Order of First Reading May 8, 2007 5/9/2007SenateChief Senate Sponsor Sen. Debbie DeFrancesco Halvorson 5/15/2007SenateFirst Reading 5/15/2007SenateReferred to Rules 4/17/2008SenateAssigned to Public Health 4/28/2008SenateSenate Committee Amendment No. 1 Filed with Secretary by Sen. Debbie DeFrancesco Halvorson 4/28/2008SenateSenate Committee Amendment No. 1 Referred to Rules 4/29/2008SenateSenate Committee Amendment No. 1 Rules Refers to Public Health 5/7/2008SenateSenate Committee Amendment No. 1 Adopted 5/8/2008SenateDo Pass as Amended Public Health; 006-000-000 5/8/2008SenatePlaced on Calendar Order of 2nd Reading May 13, 2008 5/8/2008SenateAlternate Chief Sponsor Changed to Sen. Kimberly A. Lightford 5/15/2008SenateSecond Reading 5/15/2008SenatePlaced on Calendar Order of 3rd Reading May 20, 2008 5/20/2008SenateThird Reading - Passed; 058-000-000 5/21/2008HouseArrived in House 5/21/2008HousePlaced on Calendar Order of Concurrence Senate Amendment(s) 1 5/22/2008HouseSenate Committee Amendment No. 1 Motion Filed Concur Rep. Sara Feigenholtz 5/22/2008HouseSenate Committee Amendment No. 1 Motion to Concur Referred to Rules Committee 5/27/2008HouseSenate Committee Amendment No. 1 Motion to Concur Recommends be Adopted Rules Committee; 004-000-000 5/31/2008HouseSenate Committee Amendment No. 1 House Concurs 114-000-000 5/31/2008HousePassed Both Houses 6/30/2008HouseSent to the Governor 8/29/2008HouseGovernor Approved 8/29/2008HouseEffective Date August 29, 2008 8/29/2008HousePublic Act . . . . . . . . . 95-0941