HB1770 - 104th General Assembly (2025-2026)

INS-HEALTH CARE/RARE CONDITION
Last Action

3/21/2025 - House: Rule 19(a) / Re-referred to Rules Committee
Statutes Amended In Order of Appearance

Synopsis As Introduced

Amends the Illinois Insurance Code to require an insurance policy to provide coverage for medically necessary treatments for genetic, rare, unknown or unnamed, and unique conditions, including Ehlers-Danlos syndrome and altered drug metabolism. Provides that an insurance policy that provides coverage for prescription drugs shall include coverage for opioid alternatives, coverage for medicines included in the Model List of Essential Medicines published by the World Health Organization, and coverage for custom-made medications and medical food. Provides that an insurance policy that limits the quantity of a medication in accordance with applicable State and federal law shall not require pre-approval for the treatment of patients with rare metabolism conditions that may need a higher dose of medication than what is otherwise allowed within a time frame or prescription schedule. Provides that the burden of proving that treatment is medically necessary shall not lie with the insured in cases of rejections for filing claims, preauthorization requests, and appeals related to coverage required under the Section.
Actions

DateChamberAction
1/27/2025HouseFiled with the Clerk by Rep. Lindsey LaPointe
1/28/2025HouseFirst Reading
1/28/2025HouseReferred to Rules Committee
2/25/2025HouseAssigned to Insurance Committee
3/19/2025HouseAdded Chief Co-Sponsor Rep. Nicholas K. Smith
3/19/2025HouseTo Insurance Main Subcommittee
3/21/2025HouseRule 19(a) / Re-referred to Rules Committee