Illinois General Assembly - Full Text of HR0007

HR0007 LRB104 04297 MST 14322 r

HOUSE RESOLUTION

WHEREAS, Turner Syndrome (TS) is a chromosomal abnormality that randomly affects those born female; it occurs when the secondary X chromosome is partially or completely missing; many have mosaic Turner Syndrome, for which the number of X chromosomes can vary; and

WHEREAS, Most fetuses (98-99%) with Turner Syndrome will die before birth, resulting in approximately 10% of all first-trimester miscarriages, and one in 2,000 live female births has Turner Syndrome; those who do survive often face lifelong physical, emotional, cognitive, and/or psychological challenges that can be mitigated with early diagnosis and treatment; and

WHEREAS, More than 30% of individuals born with Turner Syndrome are not diagnosed until they are 15 years of age, and only 3.5% receive adequate care; however, with increased awareness, the livelihoods of those affected can be greatly improved; there are over 85,337 individuals living with this condition in the U.S.; and

WHEREAS, An increase in awareness for Turner Syndrome can help those with the condition and can lead to earlier diagnosis and better treatment; and

WHEREAS, People living with Turner Syndrome deserve the resources, education, and support that they need for a healthy and fulfilling life; therefore, be it

RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE HUNDRED FOURTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that we declare February of 2025 as "Turner Syndrome Awareness Month" in the State of Illinois; and be it further

RESOLVED, That we urge Turner Syndrome Awareness Month to be used to increase awareness of the condition and urge that funding and support for awareness events, educational initiatives, increased research, and support groups be increased.