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| | SB2782 Enrolled | | LRB104 15930 AAS 29409 b |
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| 1 | | AN ACT concerning State government.
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| 2 | | Be it enacted by the People of the State of Illinois, |
| 3 | | represented in the General Assembly:
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| 4 | | Section 5. The Department of Public Health Powers and |
| 5 | | Duties Law of the Civil Administrative Code of Illinois is |
| 6 | | amended by adding Section 2310-750 as follows:
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| 7 | | (20 ILCS 2310/2310-750 new) |
| 8 | | Sec. 2310-750. Sudden unexpected death in epilepsy. |
| 9 | | (a) As used in this Section, "sudden unexpected death in |
| 10 | | epilepsy" means sudden, unexpected death in a patient with |
| 11 | | epilepsy, with or without evidence of a seizure. |
| 12 | | (b) The Department shall undertake a public education |
| 13 | | campaign to bring broad public awareness to communities across |
| 14 | | this State of the risk of sudden unexpected death in epilepsy |
| 15 | | that is focused on providing the public with: |
| 16 | | (1) current and evidence-based information about |
| 17 | | sudden unexpected death in epilepsy risk factors and |
| 18 | | conditions reviewed and approved by one or more |
| 19 | | professional not-for-profit organizations with expertise |
| 20 | | in neurology and epilepsy; and |
| 21 | | (2) contact information for nonprofit organizations |
| 22 | | that provide information and support services for epilepsy |
| 23 | | conditions. |
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| 1 | | (c) The Department shall post the information listed in |
| 2 | | subsection (a) on the Department's website, with the following |
| 3 | | requirements: |
| 4 | | (1) the Department shall ensure that the information |
| 5 | | under this Section is culturally and linguistically |
| 6 | | appropriate for all recipients; |
| 7 | | (2) any local or national organization that provides |
| 8 | | education or services related to epilepsy conditions may |
| 9 | | request that the Department include on its website that |
| 10 | | organization's informational material and contact |
| 11 | | information; if the Department determines that the |
| 12 | | organization's informational material, contact |
| 13 | | information, or both are necessary or appropriate under |
| 14 | | this Section, the Department may include the |
| 15 | | organization's informational material, contact |
| 16 | | information, or both on its website, in written |
| 17 | | information provided under this subsection (c), or both; |
| 18 | | and |
| 19 | | (3) the Department shall, in consultation with local |
| 20 | | and national organizations that provide education or |
| 21 | | services related to epilepsy conditions, provide guidance |
| 22 | | to health care practitioners in determining whether a |
| 23 | | patient is at elevated risk for sudden unexpected death in |
| 24 | | epilepsy, including, but not limited to, whether the |
| 25 | | patient has had convulsive seizures, the frequency and |
| 26 | | recency of such seizures, and whether the patient's |
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| 1 | | symptoms have subsided in response to medicinal or |
| 2 | | surgical treatment. |
| 3 | | (d) The Department shall adopt rules implementing this |
| 4 | | Section. |
