State of Illinois
91st General Assembly
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91_HB1242

 
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 1        AN ACT in relation to long-term care planning.

 2        Be it enacted by the People of  the  State  of  Illinois,
 3    represented in the General Assembly:

 4                   ARTICLE 1.  General Provisions

 5        Section  1-1.  Short title.  This Act may be cited as the
 6    Long-Term Care Planning Strategy Act.

 7        Section 1-5.  Purpose.  This Act is created to achieve  a
 8    broad  awareness  and use of alternatives to nursing homes to
 9    serve the increased number of people needing long-term care.

10            ARTICLE 5.  Long-Term Care Planning Committee

11        Section 5-5.  Long-term  care  planning  committee.   The
12    Director  of  Aging  shall  establish,  by  July  1,  2000, a
13    committee of individuals who are knowledgeable in  the  areas
14    of long-term care, geriatric care, community services for the
15    elderly,  long-term  care  facility inspection, or quality of
16    care assurance.   The  Director  of  Aging,  or  his  or  her
17    designees,  shall  chair  and  convene  the  committee.   The
18    committee  may  utilize  the  expertise  and  time  of  other
19    individuals  employed  by  the  Department  as  needed.   The
20    committee  shall meet as often as necessary to accomplish its
21    duties,  but  at  least  quarterly.   The   committee   shall
22    establish procedures, including public hearings, for allowing
23    regular  opportunities  for input from consumers of long-term
24    care  services,  advocates,  trade   associations,   facility
25    administrators,   county  agency  administrators,  and  other
26    interested persons.

27        Section 5-10.   Duties.   The  committee  shall  identify
 
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 1    long-term  care  issues  requiring  coordinated  policies and
 2    shall conduct analyses, coordinate  policy  development,  and
 3    make  recommendations  for  effective implementation of these
 4    policies.  The committee shall refine State long-term  goals,
 5    establish  performance  indicators, and develop other methods
 6    or measures to evaluate program performance, including client
 7    outcomes.  The committee shall review  the  effectiveness  of
 8    programs in meeting their objectives.
 9        The committee shall also do the following:
10             (1)  Facilitate  the  development  of  regional  and
11        local  bodies  to  plan and coordinate regional and local
12        services.
13             (2)  Recommend a single regional or local  point  of
14        access  for persons seeking information on long-term care
15        services.
16             (3)  Recommend  changes   in   State   funding   and
17        administrative  policies  that  are necessary to maximize
18        the use of home and community-based care and that promote
19        the  use  of  the  least   costly   alternative   without
20        sacrificing quality of care.
21             (4)  Develop  methods  of  identifying  and  serving
22        seniors  who  need minimal services to remain independent
23        but who are likely to develop a need for  more  extensive
24        services in the absence of these minimal services.
25             (5)  Develop    and    implement    strategies   for
26        advocating,  promoting,  and  developing  long-term  care
27        insurance, and encourage  insurance  companies  to  offer
28        long-term care insurance policies that are affordable and
29        offer a wide range of benefits.

30        Section  5-15.   Goals  of  the committee.  The long-term
31    goals of the committee include the following:
32             (1)  Achieve a broad awareness and use  of  low-cost
33        home  care  and other residential alternatives to nursing
 
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 1        homes.
 2             (2)  Develop a statewide system of  information  and
 3        assistance  to  enable  easy  access  to  long-term  care
 4        services.
 5             (3)  Develop   sufficient  alternatives  to  nursing
 6        homes to serve the increased  number  of  people  needing
 7        long-term care.
 8        These  goals are designed to create a new community-based
 9    care  paradigm  for  long-term  care  in  order  to  maximize
10    independence of the older adult  population  and  ensure  the
11    cost-effective use of financial and human resources.

12        Section  5-20.   Reports.   The committee shall prepare a
13    biennial report and the chair shall deliver  this  report  to
14    the legislature beginning January 31, 2001, listing progress,
15    achievements,  and  current  goals and objectives.  The chair
16    shall recommend changes  in,  or  additions  to,  legislation
17    necessary or desirable to fulfill their responsibilities.

18        Section  5-25.  Data.  The committee shall have access to
19    data  from  the  Illinois  Department  of  Public  Aid,   the
20    Department   of   Public  Health,  the  Department  of  Human
21    Services, the Department of Insurance, and the Department  on
22    Aging  for  carrying  out  its  duties  under  this Act.  The
23    committee may  have access to data on persons, including data
24    on vendors of services, to carry out  the  purposes  of  this
25    Act.   If  the  committee  receives  data  that is collected,
26    maintained,  used,  or  disseminated  in  an   investigation,
27    authorized by statute and relating to enforcement of rules or
28    law,  the  committee  or  the  chair  shall not disclose that
29    information except under statute or valid court order, or  to
30    a   party   named   in   a   civil  or  criminal  proceeding,
31    administrative or judicial, for preparation of defense.
32        Data described in this subsection is classified as public
 
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 1    data upon its submission to an administrative  law  judge  or
 2    court in an administrative or judicial proceeding.

 3        Section 5-30.  Long-term care research and database.  The
 4    committee  shall  collect  and  analyze  State  and  national
 5    long-term  care  data and research, including relevant health
 6    data, information, and research relating  to  long-term  care
 7    and  social  needs,  service  utilization,  costs, and client
 8    outcomes.  The committee shall make recommendations to  State
 9    agencies and other public and private agencies for methods of
10    improving  coordination of existing data, develop data needed
11    for  long-term  care  research,  and  promote  new   research
12    activities.   Research  and data activities shall be designed
13    to accomplish the following:
14        (1)  Improve the validity  and  reliability  of  existing
15    data and research information.
16        (2)  Identify  sources  of  funding and potential uses of
17    funding sources.
18        (3)  Evaluate the effectiveness and  client  outcomes  of
19    existing programs.
20        (4)  Identify  and plan for future changes in the number,
21    level, and type of services needed by seniors.

22                  ARTICLE 10.  Seniors' Agenda for
23                     Independent Living Projects
24                  for a New Long-Term Care Strategy

25        Section 10-5.  Purpose, mission, goals, and objectives.
26        (a)  The purpose  of  implementing  Seniors'  Agenda  for
27    Independent  Living  (SAIL) projects under this Article is to
28    demonstrate a new cooperative strategy for the long-term care
29    system in the State.
30        The projects are part of the initial plan for  a  20-year
31    strategy.  The mission of the 20-year strategy is to create a
 
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 1    new community-based care paradigm for long-term care in order
 2    to  maximize  independence of the older adult population, and
 3    to  ensure  cost-effective  use  of   financial   and   human
 4    resources.   The  goals  for the 20-year strategy include the
 5    following:
 6             (1)  Achieve a broad awareness and use  of  low-cost
 7        home  care  and other residential alternatives to nursing
 8        homes.
 9             (2)  Develop a statewide system of  information  and
10        assistance  to  enable  easy  access  to  long-term  care
11        services.
12             (3)  Develop   sufficient  alternatives  to  nursing
13        homes to serve the increased  number  of  people  needing
14        long-term care.
15             (5)  Build a community-based approach and commitment
16        to delivering long-term care services for elderly persons
17        in their homes.
18        (b)  The  objective  for  the  fiscal years 2000 and 2001
19    biennial plan is to continue at least 4 but not more  than  6
20    projects  in  anticipation  of  a  statewide  program.  These
21    projects  will  continue  the  process  of  implementing  the
22    following:
23             (1)  A  coordinated  planning   and   administrative
24        process.
25             (2)   A   refocused  function  of  the  preadmission
26        screening program.
27             (3) The development of additional  home,  community,
28        and residential alternatives to nursing homes.
29             (4) A program to support the informal caregivers for
30        elderly persons.
31             (5) Programs to strengthen the use of volunteers.
32             (6)  Programs  to  support the building of community
33        commitment to provide long-term care for elderly persons.
34        This is done in conjunction with an expanded role of  the
 
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 1    long-term  care  planning committee as described in Article V
 2    of this Act.  The services  offered  through  these  projects
 3    will  be  available  to those who have their own funds to pay
 4    for services, as well as to  persons  who  are  eligible  for
 5    medical assistance.

 6        Section  10-10.  Design of SAIL projects; local long-term
 7    care coordinating term.
 8        (a)  The  Director  of  Aging  in  conjunction  with  the
 9    long-term  care  planning  committee's  long-range  strategic
10    plan, shall contract with SAIL projects in 4 to 6 counties or
11    groups  of  counties  to  demonstrate  the  feasibility   and
12    cost-effectiveness of a local long-term care strategy that is
13    consistent  with  the State's long-term care goals identified
14    in Section 10-5.  The  Director  of  Aging  shall  publish  a
15    notice  announcing  the  availability  of project funding and
16    giving  instructions  for   making   an   application.    The
17    instructions for the application shall identify the amount of
18    funding available for project components.
19        (b)  Projects  may  be  selected  if they demonstrate the
20    following:
21             (1)  The objectives of the local project  will  help
22        to achieve the State's long-term care goals as defined in
23        Section 10-5.
24             (2)  The  project  proposal  demonstrates that local
25        agencies have the  ability  to  perform  the  project  as
26        described  and  that  implementation of the project has a
27        reasonable chance of achieving its objectives.
28             (3)  The applicant documents efforts of  cooperation
29        with consumers and other agencies and organizations, both
30        public and private, in planning for service delivery.
31             (4)  The  applicant  shall list performance outcomes
32        and indicators that meet  the  State's  objectives.   The
33        project strategy shall provide for the following:
 
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 1                  (A)  Accessible  information,  assessment,  and
 2             preadmission  screening  activities  as described in
 3             Section 10-15.
 4                  (B)  An increase in numbers of alternative care
 5             clients served, including those  who  are  relocated
 6             from  nursing  homes, that results in a reduction of
 7             the medical assistance nursing home caseload.
 8                  (C)  The  development  of  additional  services
 9             including adult family  foster  care  homes,  family
10             adult   day   care,  assisted  living  projects  and
11             congregate housing  service  projects  in  apartment
12             buildings,  expanded home care services for evenings
13             and weekends, expanded volunteer services, caregiver
14             support, and respite care projects.

15        Section 10-15.  Accessible  information,  screening,  and
16    assessment function.
17        (a)  The projects selected by and under contract with the
18    Department   on   Aging   shall   establish   an   accessible
19    information,  screening,  and assessment function for persons
20    who need assistance and information regarding long-term care.
21    This  accessible  information,  screening,   and   assessment
22    activity   shall  include  information  and  referral,  early
23    intervention, follow-up contacts, telephone  screening,  home
24    visits,  assessments,  preadmission screening, and relocation
25    case management for the frail elderly and their caregivers in
26    the area served by the county or counties.  The purpose is to
27    ensure that information  and  help  is  provided  to  elderly
28    persons  and their families in a timely fashion when they are
29    making decisions about long-term care.  These  functions  may
30    be  split among various agencies, but shall be coordinated by
31    the local long-term care coordinating team.
32        (b)  Any information and  referral  functions  funded  by
33    other  sources, such as Title III of the Older Americans Act,
 
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 1    Title XX of the Social Security Act, and the Community Social
 2    Services  Act,  shall  be  considered  by  the  applicant  in
 3    establishing this function to avoid duplication and to ensure
 4    access  to  information  for   persons   needing   help   and
 5    information regarding long-term care.

 6        Section  10-20.   Service  development  and delivery.  In
 7    addition  to  the  information   screening   and   assessment
 8    activity,  the  applicant  may  include  provisions  for  the
 9    following:
10             (1)  The addition of a full-time staff person who is
11        responsible to develop the following services and recruit
12        providers as established in the contract.
13                  (i)  Additional adult family foster care homes.
14                  (ii)  Family adult day care providers.
15                  (iii)  An   assisted   living   program  in  an
16             apartment.
17                  (iv)  A congregate housing service project in a
18             subsidized housing project.
19                  (v)  The  expansion  of  evening  and   weekend
20             coverage  of  home care services as deemed necessary
21             by the local strategic plan.
22             (2)  Small incentive grants to new adult family care
23        providers  for  renovations  needed  to  meet   licensure
24        requirements.
25             (3)  A  plan  to  apply  for  a  congregate  housing
26        service project authorized by the Department on Aging, to
27        the extent that funds are available.
28             (4)  A  plan  to  divert  new  applicants to nursing
29        homes and to relocate a targeted population from  nursing
30        homes,  using  the  individual's  own  resources  or  the
31        funding available for services.
32             (5)  One  or more caregiver support and respite care
33        projects, as described in Section 10-25.
 
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 1        Section  10-25.   Caregiver  support  and  respite   care
 2    projects.
 3        (a)  The  Director  of  Aging  shall  establish  up to 36
 4    projects to expand the respite care network in the State  and
 5    to  support  caregivers  in  their responsibilities for care.
 6    The purpose of each project shall be to:
 7             (1)  establish  a  local  coordinated   network   of
 8        volunteer and paid respite workers;
 9             (2)  coordinate  assignment  of  respite  workers to
10        clients and care receivers  and  assure  the  health  and
11        safety of the client; and
12             (3)  provide training for caregivers and ensure that
13        support groups are available in the community.
14        (b)  The  caregiver  support and respite care funds shall
15    be available to the 4 to  6  local  long-term  care  strategy
16    projects designated in subsection (b) of Section 10-10.
17        (c)  The  Director  of  Aging  shall  publish a notice to
18    solicit proposals from public or private  nonprofit  agencies
19    for  the  projects not included in the 4 to 6 local long-term
20    care strategy projects discussed in subsection (a) of Section
21    10-10.
22        (d)  The Director of Aging shall select grantees based on
23    the following criteria:
24             (1)  The ability of the proposal to demonstrate need
25        in the area served, as evidenced  by  a  community  needs
26        assessment or other demographic data.
27             (2)  The ability of the proposal to clearly describe
28        how  the  project  will  achieve  the  purpose defined in
29        paragraph (b).
30             (3)  The  ability  of  the  proposal  to  reach   an
31        underserved population.
32             (4)  The  ability  of  the  proposal  to demonstrate
33        community commitment to  the  project,  as  evidenced  by
34        letters of support and cooperation.
 
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 1             (5)  The ability of the proposal to clearly describe
 2        the  process  for  recruiting,  training,  and retraining
 3        volunteers.
 4             (6)  The inclusion in the proposal of  the  plan  to
 5        promote  the project in the community, including outreach
 6        to persons needing the services.
 7        (e)  Funds for all projects under  this  Section  may  be
 8    used to do any of the following:
 9             (1)  Hire  a  coordinator  to  develop a coordinated
10        network of volunteer and paid respite care  services  and
11        assign workers to clients.
12             (2)  Recruit and train volunteer providers.
13             (3)  Train caregivers.
14             (4)  Ensure  the  development  of support groups for
15        caregivers.
16             (5)  Advertise the  availability  of  the  caregiver
17        support respite care project.
18             (6)  Purchase  equipment  to  maintain  a  system of
19        assigning workers to clients.
20        (f)  Project funds may not be used to  supplant  existing
21    funding sources.

22        Section  10-30.   SAIL  evaluation  and  expansion.   The
23    Director  of  Aging  shall  evaluate  the success of the SAIL
24    projects against the goals and objective  stated  in  Section
25    10-5  and  recommend  to  the legislature the continuation or
26    expansion of the long-term  care  strategy  by  February  15,
27    2000.

28        Section  10-35.  Public awareness campaign.  The Director
29    of Aging,  with  assistance  from  the  Directors  of  Public
30    Health, Insurance, and Public Aid, and the Secretary of Human
31    Services,  and with the advice of the long-term care planning
32    committee established under Article V, shall contract  for  a
 
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 1    public  awareness  campaign  to  educate  the general public,
 2    seniors, consumers, caregivers, and professionals  about  the
 3    aging  process,  the  long-term care system, and alternatives
 4    available,  including  alternative   care   and   residential
 5    alternatives.  Particular emphasis will be given to informing
 6    consumers  on  how  to  access  the  alternatives  and obtain
 7    information on the long-term care system.   The  Director  of
 8    Aging   shall   pursue  the  development  of  new  names  for
 9    preadmission screening, alternative care,  foster  care,  and
10    other  services  as deemed necessary for the public awareness
11    campaign.

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