Senate Sponsors: HAWKINSON-CULLERTON-GEO-KARIS-SEVERNS. House Sponsors: MOFFITT-ERWIN-FEIGENHOLTZ-COULSON Short description: GENETIC TESTING Synopsis of Bill as introduced: Creates the Genetic Information Privacy Act. Provides that information derived from genetic testing is confidential. Limits the use of genetic information by insurers and employers. Provides an exception to the confidentiality of genetic information with respect to criminal proceedings. Amends the Illinois Insurance Code, the Health Maintenance Organization Act, the Limited Health Service Organization Act, and the Voluntary Health Services Plans Act to provide that entities regulated under those Acts are subject to the Genetic Information Privacy Act. SENATE AMENDMENT NO. 1. Replaces everything after the enacting clause. Creates the Genetic Information Privacy Act. Provides that information derived from genetic testing is confidential. Limits the use of genetic information by insurers and employers. Provides exceptions to the confidentiality of genetic information with respect to certain disclosures by medical personnel. Exempts from the confidentiality requirements information that discloses the presence of a disease at the time of the test. Requires an individual seeking life insurance to disclose results that show a high probability that the person will be afflicted with a fatal disease. Provides that persons aggrieved by a violation of the Act have a right of action. Amends the Illinois Insurance Code, the Health Maintenance Organization Act, the Limited Health Service Organization Act, and the Voluntary Health Services Plans Act to provide that entities regulated under those Acts are subject to the Genetic Information Privacy Act. SENATE AMENDMENT NO. 2. Excludes chemical, blood, and urine analyses, drug testing and HIV testing from the scope of the bill. Provides that samples obtained by peace officers may be used for identification purposes. Authorizes expungement of court records only. Requires employers to treat genetic information in a manner consistent with federal law. Provides that compliance by insurers with the reqiurements of the Insurance Informa- tion and Privacy Article of the Ill. Insurance Code by insurers shall be deemed compliance with the disclosure limitations of this Act. Limits remedies against insurers that violate the Act. Last action on Bill: SESSION SINE DIE Last action date: 99-01-12 Location: Senate Amendments to Bill: AMENDMENTS ADOPTED: HOUSE - 0 SENATE - 2 END OF INQUIRY Full Text Bill Status