Sen. Christine Radogno

Filed: 3/19/2015

 

 


 

 


 
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1
AMENDMENT TO SENATE BILL 987

2    AMENDMENT NO. ______. Amend Senate Bill 987 by replacing
3everything after the enacting clause with the following:
 
4    "Section 1. Short title. This Act may be known as the Down
5Syndrome Information and Awareness Act.
 
6    Section 5. Definitions. As used in this Act:
7    "Clearinghouse" means a central institution or agency for
8the collection, maintenance, and distribution of materials
9related to Down syndrome.
10    "Down syndrome" means a chromosomal condition caused by an
11error in cell division that results in the presence of an extra
12whole or partial copy of chromosome 21.
13    "First call program" means a volunteer group of individuals
14who make themselves available to parents of children newly
15diagnosed with Down syndrome.
16    "Health care provider" means any physician, hospital

 

 

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1facility, or other person that is licensed or otherwise
2authorized to deliver health care services.
 
3    Section 10. Down syndrome information. The Department
4shall make available up-to-date, evidence-based written
5information about Down syndrome that has been reviewed by
6medical experts and State and national Down syndrome
7organizations, including physical, developmental, educational
8and psychosocial outcomes, life expectancy, clinical course,
9intellectual and functional development, and treatment
10options. The written information shall include contact
11information regarding first call programs and clearinghouses,
12national, State and local Down syndrome organizations, and
13other educational and support programs. The Department shall
14make this information available to persons who render prenatal
15care, postnatal care, or genetic counseling to parents who
16receive a prenatal or postnatal diagnosis of Down syndrome. The
17Department shall also make this information available to any
18person who has received a positive test result from a test for
19Down syndrome. The information provided under this Section
20shall be culturally and linguistically appropriate for a woman
21receiving a positive prenatal diagnosis of Down syndrome and
22for the family of a child receiving a postnatal diagnosis of
23Down syndrome.
 
24    Section 15. Distribution of information to parents. A

 

 

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1health care provider who renders prenatal or postnatal care, or
2genetic counselor who renders genetic counseling shall, upon
3receipt of a positive test result from a test for Down
4syndrome, provide the expectant or new parent with the
5information provided by the Department under Section 10 of this
6Act.".