HB4035 EngrossedLRB098 15592 RPM 50623 b

1    AN ACT concerning health.
 
2    Be it enacted by the People of the State of Illinois,
3represented in the General Assembly:
 
4    Section 5. The Illinois Health Statistics Act is amended by
5changing Section 4 as follows:
 
6    (410 ILCS 520/4)  (from Ch. 111 1/2, par. 5604)
7    Sec. 4. (a) In carrying out the purposes of this Act, the
8Department may:
9        (1) Collect and maintain health data on:
10            (i) The extent, nature, and impact of illness,
11        including factors relating to obesity and disability
12        on the population of the State;
13            (ii) The determinants of health and health hazards
14        including obesity;
15            (iii) Health resources, including the extent of
16        available manpower and resources;
17            (iv) Utilization of health care;
18            (v) Health care costs and financing; and
19            (vi) Other health or health-related matters; and .
20            (vii) The connection between the long-term effects
21        of childhood cancer and the original cancer diagnosis
22        and treatment.
23        (2) Undertake and support research, demonstrations,

 

 

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1    and evaluations respecting new or improved methods for
2    obtaining current data on the matters referred to in
3    subparagraph (1).
4    (b) The Department may collect health data under authority
5granted by any unit of local government and on behalf of other
6governmental or not-for-profit organizations, including data
7collected by local schools and the State Board of Education
8relating to obesity on the health examination form required
9pursuant to Section 27-8.1 of the School Code. The data shall
10be de-identified and aggregated pursuant to rules promulgated
11by the Department to prevent disclosure of personal identifying
12information.
13    (c) The Department shall collect data only on a voluntary
14basis from individuals and organizations, except when there is
15specific legal authority to compel the mandatory reporting of
16the health data so requested. In making any collection of
17health data from an individual or organization the Department
18must give to such individual or organization a written
19statement which states:
20        (1) Whether the individual or organization is required
21    to respond, and any sanctions for noncompliance;
22        (2) The purposes for which the health data are being
23    collected; and
24        (3) In the case of any disclosure of identifiable
25    health data for other than research and statistical
26    purposes, the items to be disclosed, to whom the data are

 

 

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1    to be disclosed and the purposes for which the data are to
2    be disclosed.
3    (d) Except as provided in Section 5, no health data
4obtained in the course of activities undertaken or supported
5under this Act may be used for any purpose other than the
6purpose for which they were supplied or for which the
7individual or organization described in the data has otherwise
8consented.
9    (e) The Department shall take such actions as may be
10necessary to assure that statistics developed under this Act
11are of high quality, timely, comprehensive, as well as
12specific, standardized and adequately analyzed and indexed.
13    (f) The Department shall take such action as is appropriate
14to effect the coordination of health data activities, including
15health data specifically relating to obesity collected
16pursuant to Section 27-8.1 of the School Code, within the State
17to eliminate unnecessary duplication of data collection and
18maximize the usefulness of data collected.
19    (g) The Department shall (1) participate with state, local
20and federal agencies in the design and implementation of a
21cooperative system for producing comparable and uniform health
22information and statistics at the federal, state, and local
23levels; and (2) undertake and support research, development,
24demonstrations, and evaluations respecting such cooperative
25system.
26(Source: P.A. 93-966, eff. 1-1-05.)