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1 | AN ACT concerning aging.
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2 | Be it enacted by the People of the State of Illinois,
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3 | represented in the General Assembly:
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4 | Section 1. Short title. This Act may be cited as the | |||||||||||||||||||
5 | Recognize, Assist, Include, Support, and Engage (RAISE) Family | |||||||||||||||||||
6 | Caregivers Act. | |||||||||||||||||||
7 | Section 5. Definitions. As used in this Act: | |||||||||||||||||||
8 | (1) "Advisory Council" means the Family Caregiving | |||||||||||||||||||
9 | Advisory Council. | |||||||||||||||||||
10 | (2) "Family caregiver" means an adult family member or | |||||||||||||||||||
11 | other individual who has a significant relationship with, and | |||||||||||||||||||
12 | who provides a broad range of assistance to, an individual | |||||||||||||||||||
13 | with a chronic or other health condition, disability, or | |||||||||||||||||||
14 | functional limitation. | |||||||||||||||||||
15 | (3) "Director" means the Director of Aging. | |||||||||||||||||||
16 | (4) "Strategy" means the Family Caregiving Strategy. | |||||||||||||||||||
17 | Section 10. Family Caregiving Strategy. | |||||||||||||||||||
18 | (a) In general. The Director, in consultation with the | |||||||||||||||||||
19 | heads of other appropriate State agencies, shall develop | |||||||||||||||||||
20 | jointly with the Advisory Council and submit to the Senate | |||||||||||||||||||
21 | Subcommittee on Long-Term Care and Aging and to the House | |||||||||||||||||||
22 | Workforce Development Subcommittee, and to any other State |
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1 | agencies responsible for carrying out family caregiver | ||||||
2 | programs, and make publicly available on the website of the | ||||||
3 | Department on Aging, a Family Caregiving Strategy. | ||||||
4 | (b) Contents. The Strategy shall identify recommended | ||||||
5 | actions that State agencies, units of local government, | ||||||
6 | communities, health care providers, long-term services and | ||||||
7 | supports providers, and others are taking, or may take, to | ||||||
8 | recognize and support family caregivers in a manner that | ||||||
9 | reflects their diverse needs, including with respect to the | ||||||
10 | following: | ||||||
11 | (1) Promoting greater adoption of person-centered and | ||||||
12 | family-centered care in all health and long-term services | ||||||
13 | and supports settings, with the person receiving services | ||||||
14 | and supports and the family caregiver (as appropriate) at | ||||||
15 | the center of care teams. | ||||||
16 | (2) Assessment and service planning (including care | ||||||
17 | transitions and coordination) involving family caregivers | ||||||
18 | and care recipients. | ||||||
19 | (3) Information, education and training supports, | ||||||
20 | referral, and care coordination, including with respect to | ||||||
21 | hospice care, palliative care, and advance planning | ||||||
22 | services. | ||||||
23 | (4) Respite options. | ||||||
24 | (5) Financial security and workplace issues. | ||||||
25 | (6) Delivering services based on the performance, | ||||||
26 | mission, and purpose of a program while eliminating |
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1 | redundancies. | ||||||
2 | (c) Duties of the Director. The Director, in carrying out | ||||||
3 | subsection (a), shall oversee the following: | ||||||
4 | (1) Collecting and making publicly available | ||||||
5 | information submitted by the Advisory Council under | ||||||
6 | subsection (d) of Section 15 to the Senate Subcommittee on | ||||||
7 | Long-Term Care and Aging and to the House Workforce | ||||||
8 | Development Subcommittee, including evidence-based or | ||||||
9 | promising practices and innovative models (both domestic | ||||||
10 | and foreign) regarding the provision of care by family | ||||||
11 | caregivers or support for family caregivers. | ||||||
12 | (2) Coordinating and assessing existing State programs | ||||||
13 | and activities to recognize and support family caregivers | ||||||
14 | while ensuring maximum effectiveness and avoiding | ||||||
15 | unnecessary duplication. | ||||||
16 | (3) Providing technical assistance, as appropriate, | ||||||
17 | such as disseminating identified best practices and | ||||||
18 | information sharing based on reports provided under | ||||||
19 | subsection (d) of Section 15, to State or local efforts to | ||||||
20 | support family caregivers. | ||||||
21 | (d) Initial strategy; updates. The Director shall: | ||||||
22 | (1) not later than 18 months after the effective date | ||||||
23 | of this Act, develop, publish, and submit to the Senate | ||||||
24 | Subcommittee on Long-Term Care and Aging and to the House | ||||||
25 | Workforce Development Subcommittee, an initial Strategy | ||||||
26 | incorporating the items addressed in the Advisory |
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1 | Council's initial report under subsection (d) of Section | ||||||
2 | 15 and other relevant information, including best | ||||||
3 | practices, for recognizing and supporting family | ||||||
4 | caregivers; and | ||||||
5 | (2) biennially update, republish, and submit to the | ||||||
6 | Senate Subcommittee on Long-Term Care and Aging and to the | ||||||
7 | House Workforce Development Subcommittee the Strategy, | ||||||
8 | taking into account the most recent annual report | ||||||
9 | submitted under paragraph (1) of subsection (d) of Section | ||||||
10 | 15: | ||||||
11 | (A) to reflect new developments, challenges, | ||||||
12 | opportunities, and solutions; and | ||||||
13 | (B) to review progress based on recommendations | ||||||
14 | for recognizing and supporting family caregivers in | ||||||
15 | the Strategy and, based on the results of such review, | ||||||
16 | recommend priority actions for improving the | ||||||
17 | implementation of such recommendations, as | ||||||
18 | appropriate. | ||||||
19 | (e) Process for public input. The Director shall establish | ||||||
20 | a process for public input to inform the development of, and | ||||||
21 | updates to, the Strategy, including a process for the public | ||||||
22 | to submit recommendations to the Advisory Council and an | ||||||
23 | opportunity for public comment on the proposed Strategy. | ||||||
24 | (f) No preemption. Nothing in this Act preempts any | ||||||
25 | authority of a unit of local government to recognize or | ||||||
26 | support family caregivers. |
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1 | (g) Rule of construction. Nothing in this Act shall be | ||||||
2 | construed to permit the Director (through rule, guidance, | ||||||
3 | grant criteria, or otherwise) to: | ||||||
4 | (1) mandate, direct, or control the allocation of | ||||||
5 | State or local resources; | ||||||
6 | (2) mandate the use of any of the best practices | ||||||
7 | identified in the reports required under this Act; or | ||||||
8 | (3) otherwise expand the authority of the Director | ||||||
9 | beyond that expressly provided to the Director in this | ||||||
10 | Act. | ||||||
11 | Section 15. Family Caregiving Advisory Council. | ||||||
12 | (a) Convening. The Director shall convene a Family | ||||||
13 | Caregiving Advisory Council to advise and provide | ||||||
14 | recommendations, including identified best practices, to the | ||||||
15 | Director on recognizing and supporting family caregivers. | ||||||
16 | (b) Membership. | ||||||
17 | (1) In general. The members of the Advisory Council | ||||||
18 | shall consist of: | ||||||
19 | (A) the appointed members under paragraph (2); and | ||||||
20 | (B) the State members under paragraph (3). | ||||||
21 | (2) Appointed members. In addition to the State | ||||||
22 | members under paragraph (3), the Director shall appoint | ||||||
23 | not more than 15 voting members of the Advisory Council | ||||||
24 | who are not representatives of State departments or | ||||||
25 | agencies and who shall include at least one representative |
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1 | of each of the following: | ||||||
2 | (A) Family caregivers. | ||||||
3 | (B) Older adults with long-term services and | ||||||
4 | supports needs. | ||||||
5 | (C) Individuals with disabilities. | ||||||
6 | (D) Health care and social service providers. | ||||||
7 | (E) Long-term services and supports providers. | ||||||
8 | (F) Employers. | ||||||
9 | (G) Paraprofessional workers. | ||||||
10 | (H) State and local officials. | ||||||
11 | (I) Accreditation bodies. | ||||||
12 | (J) Veterans. | ||||||
13 | (K) As appropriate, other experts and advocacy | ||||||
14 | organizations engaged in family caregiving. | ||||||
15 | (3) State members. The State members of the Advisory | ||||||
16 | Council, who shall be nonvoting members, shall consist of | ||||||
17 | the following: | ||||||
18 | (A) The Director of Healthcare and Family Services | ||||||
19 | or his or her designee. | ||||||
20 | (B) The Secretary of Human Services or his or her | ||||||
21 | designee who has experience in both aging and | ||||||
22 | disability. | ||||||
23 | (C) The Director of Veterans' Affairs or his or | ||||||
24 | her designee. | ||||||
25 | (D) The heads of other State departments or | ||||||
26 | agencies (or their designees), including relevant |
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1 | departments or agencies that oversee labor and | ||||||
2 | workforce, economic, government financial policies, | ||||||
3 | community service, and other impacted populations, as | ||||||
4 | appointed by the Director or the Chair of the Advisory | ||||||
5 | Council. | ||||||
6 | (4) Diverse representation. The Director shall ensure | ||||||
7 | that the membership of the Advisory Council reflects the | ||||||
8 | diversity of family caregivers and individuals receiving | ||||||
9 | services and supports. | ||||||
10 | (c) Meetings. The Advisory Council shall meet quarterly | ||||||
11 | during the one-year period beginning on the effective date of | ||||||
12 | this Act and at least 3 times during each year thereafter. | ||||||
13 | Meetings of the Advisory Council shall be open to the public. | ||||||
14 | (d) Advisory Council annual reports. | ||||||
15 | (1) In general. Not later than 12 months after the | ||||||
16 | effective date of this Act, and annually thereafter, the | ||||||
17 | Advisory Council shall submit to the Senate Subcommittee | ||||||
18 | on Long-Term Care and Aging and to the House Workforce | ||||||
19 | Development Subcommittee, and make publicly available on | ||||||
20 | the website of the Department on Aging, a report | ||||||
21 | concerning the development, maintenance, and updating of | ||||||
22 | the Strategy, including a description of the outcomes of | ||||||
23 | the recommendations and any priorities included in the | ||||||
24 | initial report in accordance with paragraph (2), as | ||||||
25 | appropriate. | ||||||
26 | (2) Initial report. The Advisory Council's initial |
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1 | report under paragraph (1) shall include: | ||||||
2 | (A) an inventory and assessment of all | ||||||
3 | State-funded efforts to recognize and support family | ||||||
4 | caregivers and the outcomes of such efforts, including | ||||||
5 | analyses of the extent to which State-funded efforts | ||||||
6 | are reaching family caregivers and gaps in such | ||||||
7 | efforts; | ||||||
8 | (B) recommendations: | ||||||
9 | (i) to improve and better coordinate State | ||||||
10 | programs and activities to recognize and support | ||||||
11 | family caregivers, as well as opportunities to | ||||||
12 | improve the coordination of such State programs | ||||||
13 | and activities with programs administered by units | ||||||
14 | of local government; and | ||||||
15 | (ii) to effectively deliver services based on | ||||||
16 | the performance, mission, and purpose of a program | ||||||
17 | while eliminating redundancies, avoiding | ||||||
18 | unnecessary duplication and overlap, and ensuring | ||||||
19 | the needs of family caregivers are met; | ||||||
20 | (C) the identification of challenges faced by | ||||||
21 | family caregivers, including financial, health, and | ||||||
22 | other challenges, and existing approaches to address | ||||||
23 | such challenges; and | ||||||
24 | (D) an evaluation of how family caregiving impacts | ||||||
25 | the Medicare program, the Medical Assistance program | ||||||
26 | under Article V of the Illinois Public Aid Code, and |
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1 | other State programs. | ||||||
2 | Section 20. Funding. No additional funds are authorized to | ||||||
3 | be appropriated to carry out this Act. This Act shall be | ||||||
4 | carried out using funds otherwise authorized. | ||||||
5 | Section 25. Termination. The authority and obligations | ||||||
6 | established by this Act shall terminate on the date that is 3 | ||||||
7 | years after the effective date of this Act.
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8 | Section 30. Repealer. This Act is repealed 4 years after | ||||||
9 | the effective date of this Act.
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