Sen. Laura M. Murphy

Filed: 3/26/2018





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2    AMENDMENT NO. ______. Amend Senate Bill 3507 by replacing
3everything after the enacting clause with the following:
4    "Section 5. The School Code is amended by adding Section
522-33 as follows:
6    (105 ILCS 5/22-33 new)
7    Sec. 22-33. Self-administration of pancreatic enzyme
8replacement therapy.
9    (a) In this Section:
10    "Emergency care plan" means a student-specific action plan
11developed by a school district, public school, or nonpublic
12school to facilitate quick and appropriate responses to an
13emergency in a school setting.
14    "Individualized health care plan" means a written plan of
15care developed by a school district, public school, or
16nonpublic school that outlines the provisions of a student's



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1health care services and that is intended to achieve specific
2student outcomes.
3    "Pancreatic insufficiency" means a disorder of the
4digestive system. "Pancreatic insufficiency" may include the
5diagnosis of cystic fibrosis, a chronic disease that affects an
6individual's lungs and digestive system.
7    (b) A school district, public school, or nonpublic school
8must permit a student diagnosed with a pancreatic insufficiency
9to self-administer and self-manage his or her pancreatic enzyme
10replacement therapy if the parent or guardian of the student
11provides the school with written authorization for the
12student's self-administration and self-management of the
13therapy and written authorization for the therapy from the
14student's physician, physician assistant, or advanced practice
15registered nurse. Information received by a school district or
16school under this subsection (b) shall be kept on file in the
17office of the school nurse or, in the absence of a school
18nurse, the school's administrator.
19    (c) Each school district, public school, or nonpublic
20school shall adopt an emergency care plan that may be part of a
21student's individualized health care plan developed under
22subsection (d) this Section and that includes all of the
24        (1) A plan of action in the event a student is unable
25    to self-administer or self-manage his or her pancreatic
26    enzyme replacement therapy.



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1        (2) The situations in which a school must call 911.
2    (d) Each school district, public school, or nonpublic
3school shall develop an individualized health care plan for a
4student subject to this Section. The school district or school
5must develop the plan in collaboration with the student's
6physician, parent or guardian, and other school personnel to
7determine how to manage the student's pancreatic insufficiency
8while in school, participating in a school-sponsored activity,
9or in transit to or from school or a school-sponsored activity.
10The plan must be student-specific and must include all of the
12        (1) The student's health status, risks, concerns, and
13    strengths.
14        (2) Any diagnoses from the student's physician or a
15    school nurse.
16        (3) Any interventions performed on the student by
17    school personnel.
18        (4) Training for school personnel.
19        (5) A list of goals that meet the health care needs of
20    the student and protect the safety of all students from the
21    misuse or abuse of pancreatic enzyme replacement therapy
22    medication.".