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health care services and that is intended to achieve specific
"Pancreatic insufficiency" means a disorder of the
digestive system. "Pancreatic insufficiency" may include the
diagnosis of cystic fibrosis, a chronic disease that affects an
individual's lungs and digestive system.
(b) A school district, public school, or nonpublic school
must permit a student diagnosed with a pancreatic insufficiency
to self-administer and self-manage his or her pancreatic enzyme
replacement therapy if the parent or guardian of the student
provides the school with written authorization for the
student's self-administration and self-management of the
therapy and written authorization for the therapy from the
student's physician, physician assistant, or advanced practice
registered nurse. Information received by a school district or
school under this subsection (b) shall be kept on file in the
office of the school nurse or, in the absence of a school
nurse, the school's administrator.
(c) Each school district, public school, or nonpublic
school shall adopt an emergency care plan that may be part of a
student's individualized health care plan developed under
subsection (d) this Section and that includes all of the
(1) A plan of action in the event a student is unable
to self-administer or self-manage his or her pancreatic
enzyme replacement therapy.
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(2) The situations in which a school must call 911.
(d) Each school district, public school, or nonpublic
school shall develop an individualized health care plan for a
student subject to this Section. The school district or school
must develop the plan in collaboration with the student's
physician, parent or guardian, and other school personnel to
determine how to manage the student's pancreatic insufficiency
while in school, participating in a school-sponsored activity,
or in transit to or from school or a school-sponsored activity.
The plan must be student-specific and must include all of the
(1) The student's health status, risks, concerns, and
(2) Any diagnoses from the student's physician or a
(3) Any interventions performed on the student by
(4) Training for school personnel.
(5) A list of goals that meet the health care needs of
the student and protect the safety of all students from the
misuse or abuse of pancreatic enzyme replacement therapy